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November 2008 ISN News

Online Survey: Needs Assessment of College Students Diagnosed with Autoimmune Related Diseases

(Expired) Needs Assessment of College Students Diagnosed with Autoimmune Related Diseases. If you are a college student diagnosed with a(n) autoimmune related disease(s), then you may be eligible to participate in this study. It's an anonymous on-line questionnaire asking about your health related academic problems, needs, perceptions, and experiences of living with an autoimmune related disease while attending college. Must be 18 or older and currently enrolled full time or part time in a 4-year institute of higher education diagnosed with one or more autoimmune related diseases by your health care provider. Researcher Lauren Boyle, Indiana University. Posted 11/21/08.

ISN Request for Photos of Scleroderma Mouth Involvement

The International Scleroderma Network has an urgent request from a dental hygienist researcher for photos of scleroderma oral manifestations. They would like high resolution photos of the head, neck and more specifically the oral cavity of an individual with systemic scleroderma. Please inquire or submit photos by email to [email protected]. Posted 11/20/08.

Welcome Hilda Broome, ISN New or Renewing Member

The International Scleroderma Network welcomes Hilda Broomeas a new or renewing member. ISN Email memberships are $25 and Postal memberships are $35. Members receive the wonderful SCLERO.ORG Newsletter! Posted 11/14/08. (Also see Donate/Join/Shop)

ISN Vehicle Donation Program for United States and Canada!

Donate Your Vehicle! Free towing. Fast service. We accept cars, trucks, motorcycles, snowmobiles and boats! Call Toll Free 1-877-537-5277. Donate for "ISN". International Scleroderma Network, sclero.org. Posted 11/07/08. (Also see Donate/Join/Shop)

Welcome Doris Razo, ISN New or Renewing Member

The International Scleroderma Network welcomes Doris Razo as a new or renewing member. ISN Email memberships are $25 and Postal memberships are $35. Members receive the wonderful SCLERO.ORG Newsletter! Posted 11/07/08. (Also see Donate/Join/Shop)

Welcome Susan Le Gendre Spence, ISN Support Group Leader for Trinidad and Tobago

Susan Le Gendre Spence: ISN Support Group Leader for Trinidad and Tobago. I started doing research because I decided to start a non-profit company here at home. I found the nonprofit International Scleroderma Network (ISN) and e-mailed Shelley Ensz right away. She accepted me as an ISN volunteer and Group Leader for Trinidad and Tobago. Posted 11/07/08.

Scleroderma Can Koozies Now Available!

Scleroderma Can Koozies! Keep your hands warm with cold pop cans, $2.50 each, minimum order of 4 ($10), please. Posted 11/07/08.

Go to ISN News: October 2008
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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