SCLERO.ORG
Search
Scleroderma Newsroom
ISN News Manager: Jo Frowde
Autoimmune
Media Stories
Scleroderma
ISN/Website
ISN News Archive
Archives 2009: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2016 - 2015 - 2014 - 2013 - 2012 - 2011 - 2010 - 2009 - 2008 - 2007 - 2006 - 2005 - 2004 - 2003 - 2002

August 2009 ISN News

Sarah Wyman is Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks Sarah Wyman for her scleroderma awareness bracelets order. Posted 08/25/09. (Also see Scleroderma Awareness Bracelets)

Judith King is Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks Judith King for her ISN Membership Renewal. Members receive the quarterly Sclero Newsletter! Posted 08/25/09.

Kat Fox is Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks Kat Fox for her scleroderma awareness bracelets order. Posted 08/25/09.

In Honor of Sal G's 50th Birthday!

The nonprofit International Scleroderma Network thanks Laura B. for her research donation in honor of Sal G's 50th Birthday! Posted 08/25/09.

In Loving Memory of Maxine Gail Mackler

The nonprofit International Scleroderma Network thanks Gerald Mackler for his donation in loving memory of Maxine Gail Mackler. Posted 08/25/09.

Carrie Maddoux is Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks Carrie Maddoux for her comprehensive donation to help tackle research with funds dedicated towards a much-needed Sclero Forums software upgrade. Posted 07/21/09.

Thanks to Lisa Bulman's 4th Annual Scoring for Scleroderma Fundraiser!

The Scoring for Scleroderma 4th Annual Fundraiser to benefit the nonprofit International Scleroderma Network was a great success! It was held June 19, 2009 in the Canton Sports Plex, in Canton, Massachusetts. More than 50 women registered to play in the tournament. People who were unable to play in the tournament generously donated their time and money, making this year's event even bigger. Posted 07/21/09. (Also see ISN: Lisa Bulman)

ISN: Dr. Jerry A. Molitor, ISN Medical Advisory Board

ISN: Dr. Jerry A. Molitor. Dr. Jerry A. Molitor is Associate Professor of Medicine in the Division of Rheumatology and Autoimmune Diseases at the University of Minnesota. His translational research is focused on the development of laboratory tests called biomarkers that predict the clinical course of disease, and the response of disease to therapies. Posted 07-20-09.

New Photo: Bullous Morphea

New Photo: Bullous Morphea. We have added this new photo to the site of the very rare condition, bullous morphea, to the ISN Photo Repository. Many thanks to Amanda for submitting the photo! Posted 07/13/09. (Also see ISN Photo Repository)

(Finnish/Suomi) Tervetuloa Emmi Myohanen, ISN Kääntäjä (Suomi)

Emmi Myohanen: ISN kääntäjä (suomi). Hei, nimeni on Emmi ja olen opiskelija Suomesta, teidän ISN kääntäjänne (suomi). Minulla diagnosoitiin paikallinen skleroderma kun olin 6 vuotta vanha, 1996. Olen möys Suome skleroderma yhdistyksen sihteeri, joka on ISN:n yhteistyökumppani. Posted 07/13/09.

Welcome to Emmi Myohanen, ISN Finnish Translator

Emmi Myohanen: ISN Finnish Translator. Hi there, my name is Emmi and I'm a student from Finland, your ISN Finnish Translator. I was diagnosed with localized scleroderma when I was only 6 years old, in 1996. I am also the secretary of The Finnish Scleroderma Association, which is an ISN Affiliate. Posted 07/13/09.

ISN Thanks Carol Miller for her Voices of Scleroderma Book Series Order!

Thanks to Carol Miller for her Voices of Scleroderma book series order! You too can cuddle up with our scleroderma heroes as we regale our courageous battle with "the disease that turns people to stone." Laugh with our inspiring whimsy, and clutch our steadfast warmth to your heart. Embrace the knowledge no matter what befalls you, we understand, and you are not alone. Snatch up the sale price now, regularly $25.00 -- now only $14.99 each, only when ordered directly from the ISN, while supplies last! Posted 07/13/09.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 07/01/09.

Donate Your Car/Truck/Motorcycle/Boat!

The nonprofit International Scleroderma Network accepts cars, trucks, motorcycles, snowmobiles and boats — from the U.S. and Canada. To donate your vehicle, please call toll free 1-877-537-5277. Donate for "ISN". International Scleroderma Network, sclero.org. Posted 07/01/09. (Also see Donate Your Vehicle)

 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.