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September 2009 ISN News

Thanks to Anonymous Donor: Silver Sponsor of Earl Manns Marathons!

The nonprofit International Scleroderma Network thanks an Anonymous Donor for their Silver Sponsorship for upcoming Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. (Also see Earl Manns, and Judy Tarro) Posted 09/28/09.

In Loving Memory of Roger Ford (Birdman)

Obituary: Roger Dean Ford. Survivors include his beloved wife and best friend, Julie Ford of Oak Island, NC. Memorials should be made to International Scleroderma Network, 7455 France Ave SO # 266, Edina MN, 55435 or online at sclero.org. Arrangements are in the care of Heritage Funeral Home, Weddington Chapel. Online condolences may be left at www.heritagefuneral.net. (Also see: ISN Donate in Memory) Posted 9-23-09. Thank you to donors in his memory: Gene and Shelley Ensz and William E. Schuck.

Running for SCLERO.ORG!

Running for SCLERO.ORG: Sponsor Earl Manns in Kansas City, Missouri Marathon, October 17, 2009! I'm running in honor of my daughter Mya, and in memory of Judy Tarro. (Also see Earl Manns, and Judy Tarro) Posted 09/21/09.

ISN is Tackling Scleroderma Now, Thanks to Recent Donors!

The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: Kathy Baxter, United Way of Snohomish County, Jody Monserrate, Wendy Custer, George and Sarah Inglis, Mary Wise, McGraw-Hill Companies, Anonymous Donor, Anonymous Foundation, Jason Lee, Karen Burdsall, Lucy Leonard, and Barbara Lyons. 09/17/09. (Also see: Sclero Shop/Donate)

Thanks to Ron and Jo Gledhill: Silver Sponsor of Earl Manns Marathons!

The nonprofit International Scleroderma Network thanks Ron and Jo Gledhill for their Silver Sponsorship for upcoming Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. (Also see Donate Now, Earl Manns, and Judy Tarro) Posted 09/16/09.

Online support for scleroderma patients.

Last year, together with her son, Adelwyn Holder, Susan Le Gendre Spence, who has Systemic Scleroderma, launched the Scleroderma Care Foundation (SCF), after realizing a need for nationwide public awareness about the disease and to reach out to other sufferers. SCF is now an affiliate of the International Scleroderma Network (ISN). Trinidad and Tobago's Newsday. 09/15/09. (Also see: Susan LeGendre)

Thanks to George and Sarah Inglis: Silver Sponsor of Earl Manns Marathons!

The nonprofit International Scleroderma Network thanks George and Sarah Inglis for their Silver Sponsorship for upcoming Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. (Also see Earl Manns, and Judy Tarro) Posted 09/16/09.

Thanks to Gene and Shelley Ensz: Silver Sponsor of Earl Manns Marathons!

The nonprofit International Scleroderma Network thanks Gene and Shelley Ensz for their Silver Sponsorship for upcoming Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. (Also see Earl Manns, and Judy Tarro) Posted 09/16/09.

Running for SCLERO.ORG!

Running for SCLERO.ORG: Sponsor Earl Manns in Ohio Marathon, September 19, 2009! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Earl Manns, and Judy Tarro) Posted 09/16/09.

Scleroderma Research: On-line Survey

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 09/08/09.

Donate Your Car/Truck/Motorcycle/Boat!

Donate your Car to ISN!The nonprofit International Scleroderma Network accepts cars, trucks, motorcycles, snowmobiles and boats -- from the U.S. and Canada. To donate your vehicle, please call toll free 1-877-537-5277. Donate for "ISN". International Scleroderma Network, sclero.org. Posted 09/08/09. (Also see: Donate Your Vehicle)

Go to ISN News: September 2009
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

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