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October 2009 ISN News

In Loving Memory of Roger Ford (Birdman)

Thanks to Julie Ford for her donation in loving memory of Roger Ford (Birdman) and in honor of Jim White.

ISN is Tackling Scleroderma Now, Thanks to Recent Donors!

The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: Diane Scarola, Sheryl Lawson, McGraw Hill Companies, Janey Willis, Anonymous Donor, Melinda Pettit, Melissa Peterson, Ellen Peroutka and Marilyn Oxby. 10/27/09.

Amanda Thorpe: ISN Email Support Specialist

Amanda Thorpe: ISN Email Support Specialist. In October 2009, I expanded my involvement by also volunteering as an ISN Email Support Specialist. In this role, I am responsible for answering most of the private emails submitted to the main site (in English). I'm lovin' the weird 'n' wacky world of sclero.org and I am particularly looking forward to helping people who are newly diagnosed. Posted 10-19-09.

Thanks to Janey Willis, Booster Sponsor of Earl Manns Marathons!

The nonprofit International Scleroderma Network thanks Janey Willis for her Booster Sponsorship for the Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. (Also see Earl Manns, and Judy Tarro) Posted 10/19/09.

ISN is Tackling Scleroderma Now, Thanks to Recent Donors!

The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: McGraw Hill Companies, Janey Willis, Anonymous Donor, Melinda Pettit, Melissa Peterson, Ellen Peroutka and Marilyn Oxby. 10/19/09.

In Loving Memory of Roger Ford (Birdman)

Obituary: Roger Dean Ford. Survivors include his beloved wife and best friend, Julie Ford of Oak Island, NC. Memorials should be made to International Scleroderma Network, 7455 France Ave S # 266, Edina MN, 55435 or online at sclero.org. Arrangements are in the care of Heritage Funeral Home, Weddington Chapel. Online condolences may be left at www.heritagefuneral.net. Thank you to donors in his memory:

In Loving Memory of Lenea Lathrop

The International Scleroderma Network thanks Damany Phifer for her generous donation in memory of Lenea Lathrop. Posted 10/09/09.

Kahnawake Scleroderma Cluster

A Message to the Kahnawake Mohawk Nation Re:Scleroderma Epidemic at Kahnawake. It is clear that the people of Kahnawake have been exposed to solvents from local industry and from dump sites. It is clear that there is much Scleroderma at Kahnawake. The high rate of Scleroderma must be investigated at Kahnawake and perhaps, Akwesasne. John H.W. Hummell, 10/05/09. (Also see Causes of Scleroderma: Clusters and Causes of Scleroderma; Solvents, and Kahnawake Scleroderma Support Group)

ISN is Tackling Scleroderma Now, Thanks to Recent Donors!

The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: Melissa Peterson, Ellen Peroutka and Marilyn Oxby. 10/02/09.

Running for SCLERO.ORG!

Running for SCLERO.ORG: Sponsor Earl Manns in Kansas City, Missouri Marathon, October 17, 2009! I'm running in honor of my daughter Mya, and in memory of Judy Tarro. (Also see Earl Manns, and Judy Tarro) Posted 10/01/09.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 10/01/09.

Go to ISN News: September 2009
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

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