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| October 2009 ISN Donation and Website News |
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| In Loving Memory of Roger Ford (Birdman) |
| Thanks to Julie Ford for her donation in loving memory of Roger Ford (Birdman) and in honor of Jim White. (Also see: ISN Donate in Memory) |
| ISN is Tackling Scleroderma Now, Thanks to Recent Donors! |
| The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: Diane Scarola, Sheryl Lawson, McGraw Hill Companies, Janey Willis, Anonymous Donor, Melinda Pettit, Melissa Peterson, Ellen Peroutka and Marilyn Oxby. 10/27/09. (Also see: Sclero Shop/Donate) |
| Amanda Thorpe: ISN Email Support Specialist |
| Amanda Thorpe: ISN Email Support Specialist. In October 2009, I expanded my involvement by also volunteering as an ISN Email Support Specialist. In this role, I am responsible for answering most of the private emails submitted to the main site (in English). I'm lovin' the weird 'n' wacky world of sclero.org and I am particularly looking forward to helping people who are newly diagnosed. Posted 10-19-09. |
| Thanks to Janey Willis, Booster Sponsor of Earl Manns Marathons! |
| The nonprofit International Scleroderma Network thanks Janey Willis for her Booster Sponsorship for the Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. (Also see Donate Now, Earl Manns, and Judy Tarro) Posted 10/19/09. |
| ISN is Tackling Scleroderma Now, Thanks to Recent Donors! |
| The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: McGraw Hill Companies, Janey Willis, Anonymous Donor, Melinda Pettit, Melissa Peterson, Ellen Peroutka and Marilyn Oxby. 10/19/09. (Also see: Sclero Shop/Donate) |
| In Loving Memory of Roger Ford (Birdman) |
| Obituary: Roger Dean Ford. Survivors include his beloved wife and best friend, Julie Ford of Oak Island, NC. Memorials should be made to International Scleroderma Network, 7455 France Ave S # 266, Edina MN, 55435 or online at www.sclero.org. Arrangements are in the care of Heritage Funeral Home, Weddington Chapel. Online condolences may be left at www.heritagefuneral.net. (Also see: ISN Donate in Memory) Thank you to donors in his memory:
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| In Loving Memory of Lenea Lathrop |
| The International Scleroderma Network thanks Damany Phifer for her generous donation in memory of Lenea Lathrop. (Also see: ISN Donate in Memory) Posted 10/09/09. |
| Kahnawake Scleroderma Cluster |
A Message to the Kahnawake Mohawk Nation Re:Scleroderma Epidemic at Kahnawake. It is clear that the people of Kahnawake have been exposed to solvents from local industry and from dump sites. It is clear that there is much Scleroderma at Kahnawake. The high rate of Scleroderma must be investigated at Kahnawake and perhaps, Akwesasne. John H.W. Hummell, 10/05/09. (Also see: Causes of Scleroderma: Clusters and Causes of Scleroderma; Solvents, and Kahnawake Scleroderma Support Group) |
| ISN is Tackling Scleroderma Now, Thanks to Recent Donors! |
| The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: Melissa Peterson, Ellen Peroutka and Marilyn Oxby. 10/02/09. (Also see: Sclero Shop/Donate) |
| Running for SCLERO.ORG! |
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| Running for SCLERO.ORG: Sponsor Earl Manns in Kansas City, Missouri Marathon, October 17, 2009! I'm running in honor of my daughter Mya, and in memory of Judy Tarro. (Also see Donate Now, Earl Manns, and Judy Tarro) Reposted 10/01/09. |
| Scleroderma Research: On-line Survey |
Stressful Life Events, Quality of Attachment, Resilience and Experience of Scleroderma. (Password: Scleroderma1)
This on-line survey is about the experience of Scleroderma. We invite people aged 18 years and over diagnosed with Scleroderma to complete the online survey. Scleroderma Research, Bond University, Australia. Reposted 10/01/09. |
| Actelion Pharmaceuticals is Tackling Scleroderma Now! |
 The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma and pulmonary hypertension now! Reposted 10/01/09. |
| New Personal Stories |
| Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end... |
| (Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia... |
| (Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was... |
| Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information... |
| More New Stories: August-November 2009 |
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Polski | Russian | Spanish | Turkish | Other Languages |
| We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes. |
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| Go to ISN News: September 2009 |
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