February 2010 ISN Donation and Website News |
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| Scleroderma Research and Awareness Act | |||||||||
| S.1545 - Scleroderma Research and Awareness Act. A bill to expand the research and awareness activities of the National Institute of Arthritis and Musculoskeletal and Skin Diseases and the Centers for Disease Control and Prevention with respect to scleroderma, and for other purposes. Open Congress. 2010. | |||||||||
| Do you have diffuse scleroderma and are between the ages of 18 and 69 (inclusive)? | |||||||||
| The SCOT Trial (Scleroderma: Cyclophosphamide Or Transplantation) is still recruiting patients who have diffuse scleroderma. The SCOT trials are comparing the potential benefits of stem cell transplant and high-dose monthly cyclophosphamide (Cytoxan) in the treatment of scleroderma. (Also see: SCOT Trial) Reposted 2/26/10. | |||||||||
| Do you have digital (finger) ulcers? | |||||||||
| The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Reposted 2/26/10. (Also see: DISTOL Trial) | |||||||||
| In Loving Memory of Katrina Dollarhide | |||||||||
![]() The International Scleroderma Network thanks the following people for their generous donation in loving memory of Katrina Dollarhide: Renate Knox, Mary Westfield, Danyelle Spurlock, Hilda McCain, Jacque White, Kenneth R. Smith, and Gene and Shelley Ensz. Read obituary. Posted 02-26-10. (Also see: Donate in Memory) |
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| Actelion Pharmaceuticals is Tackling Scleroderma Now! | |||||||||
The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma and pulmonary hypertension now! Reposted 2/10/10. |
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