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Janey WillisHello, I am Janey Willis, ISN News Director and ISN Asst. Webmaster. David Becker, ISN Assistant News Guide researches our Autoimmune News section. Jeannie McClelland, ISN Assistant News Guide, researches Scleroderma Medical and Media News. Assistant News Guide Lisa Bulman posts these stories to our Sclero Forums.
Scleroderma Medical News
Autoimmune News
Media Stories
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Donations & In Memory
New Personal Stories

February 2010 ISN Donation and Website News

Scleroderma Research and Awareness Act
S.1545 - Scleroderma Research and Awareness Act. A bill to expand the research and awareness activities of the National Institute of Arthritis and Musculoskeletal and Skin Diseases and the Centers for Disease Control and Prevention with respect to scleroderma, and for other purposes. Open Congress. 2010.
Do you have diffuse scleroderma and are between the ages of 18 and 69 (inclusive)?
The SCOT Trial (Scleroderma: Cyclophosphamide Or Transplantation) is still recruiting patients who have diffuse scleroderma. The SCOT trials are comparing the potential benefits of stem cell transplant and high-dose monthly cyclophosphamide (Cytoxan) in the treatment of scleroderma. (Also see: SCOT Trial) Reposted 2/26/10.
Do you have digital (finger) ulcers?
The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Reposted 2/26/10. (Also see: DISTOL Trial)
In Loving Memory of Katrina Dollarhide
Donate in MemoryKatrina Dollarhide at WeddingThe International Scleroderma Network thanks the following people for their generous donation in loving memory of Katrina Dollarhide: Renate Knox, Mary Westfield, Danyelle Spurlock, Hilda McCain, Jacque White, Kenneth R. Smith, and Gene and Shelley Ensz. Read obituary. Posted 02-26-10. (Also see: Donate in Memory)
Actelion Pharmaceuticals is Tackling Scleroderma Now!
Actelion Pharmaceuticals The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma and pulmonary hypertension now! Reposted 2/10/10.
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to ISN News: January 2010
 
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