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March 2010 ISN News

Patrick Popiolek is Raising Scleroderma Awareness Now!

The nonprofit International Scleroderma Network thanks Patrick Popiolek for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 03/28/10.

Amanda Thorpe: ISN Sclero Forums Assistant Manager

The nonprofit International Scleroderma Network thanks Amanda Thorpe for taking on an additional volunteer role, as an ISN Sclero Forums Assistant Manager. Amanda is also an ISN Email Support Specialist. (Also see Amanda Thorpe , Sclero Forums, and How to Volunteer) Posted 03-19-10.

Dianne Bird is Reading Voices of Scleroderma books!

The nonprofit International Scleroderma Network thanks Dianne Bird for raising scleroderma awareness through the purchase of the Voices of Scleroderma book series, which is based on the hundreds of stories posted on the sclero.org web site. Posted 03/16/10.

Preston Burr is Raising Scleroderma Awareness Now!

The nonprofit International Scleroderma Network thanks Preston Burr for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 03/16/10.

Thanks to Barbara Pugh!

The nonprofit International Scleroderma Network thanks Barbara Pugh for her recent order of awareness bracelets, to help tackle scleroderma research, support, education and awareness! Posted 03/02/10.

Thanks to United Way of Snohomish County!

The nonprofit International Scleroderma Network thanks the United Way of Snohomish County for their recent donation to tackle scleroderma research, support, education and awareness! Posted 03/01/10.

Scleroderma Research and Awareness Act

S.1545 - Scleroderma Research and Awareness Act. A bill to expand the research and awareness activities of the National Institute of Arthritis and Musculoskeletal and Skin Diseases and the Centers for Disease Control and Prevention with respect to scleroderma, and for other purposes. Open Congress, 2010. Posted 03/01/10.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 03/01/10.

In Loving Memory of Katrina Dollarhide

International Scleroderma Network thanks the following people for their generous donation in loving memory of Katrina Dollarhide: Fort Irwin Police Department, Dennis Dollarhide, Renate Knox, Mary Westfield, Danyelle Spurlock, Hilda McCain, Jacque White, Kenneth R. Smith, and Gene and Shelley Ensz. Read obituary. Posted 03/01/10.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 03/01/10.

Go to ISN News: February 2010
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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