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April 2010 ISN News

Susan Arnett is Reading Voices of Scleroderma books!

The nonprofit International Scleroderma Network thanks Susan Arnett for raising scleroderma awareness through the purchase of a Voices of Scleroderma book. The series is based on the hundreds of stories posted on the sclero.org web site. Posted 04/30/10.

Melanie Richards is Raising Scleroderma Awareness Now!

The nonprofit International Scleroderma Network thanks Melanie Richards for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/29/10.

PAH Panel Discussion in Toledo, Ohio

There will be a Pulmonary Arterial Hypertension Panel Discussion in Toledo, Ohio on Tuesday, May 18, 2010 from 6:30-8:30 PM. Topics are evaluating all your treatment options and actively managing your PAH. Panel members include Robert J. Schilz, DO, PhD, Director of Lung Transplantation and Advanced Lung Disease at the University Hospitals of Cleveland. To register contact Jennifer Roe toll free at 866.495.5053. Registration deadline is Friday, May 14th. Jerri Sue DeTray (Sam) is the PHA Support Group Leader for Toledo. Posted 04/23/10.

Shelley Ensz Represented Sclero.org for Nursing Students

Shelley Ensz, ISN Founder and President, represented Sclero.org by participating as a panelist on Connective Tissue Diseases for nursing students at Inver Grove Hills Community College on April 21, 2010. The panel also featured patients with fibromyalgia, lupus, and arthritis and was coordinated by nursing student Ashley Welters. Posted 04/22/10. (Also see Shelley Ensz)

Maria Rector is Raising Scleroderma Awareness Now!

The nonprofit International Scleroderma Network thanks Maria Rector for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/15/10.

Jeannie McClelland Presented Sclero.org at Denver Health Fair!

Jeannie McClelland created a Sclero.org booth at the Denver Health Fair from 7am-12n on Saturday, April 10th. She says many people were intrigued by the size and scope of ISN services, including Sclero Forums Chats, Blogs and Videos. The location was the Denver Scottish Rite Consistory 1370 Grant St. Denver, Colorado. She presented materials on scleroderma and Raynaud's, and displayed the ISN's book series, Voices of Scleroderma! (Also see Jeannie McClelland) Posted 04/10/10.

Jeannie McClelland at Denver Health Fair!

Jeannie McClelland will be at the Sclero.org booth at the Denver Health Fair from 7am-12n on Saturday, April 10th. The location is Denver Scottish Rite Consistory 1370 Grant St. Denver, Colorado. She will be presenting materials on scleroderma and Raynaud's, and the ISN's book series, Voices of Scleroderma! (Also see Jeannie McClelland) Posted 04/09/10.

Thanks to Betty Burns for Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks Betty Burns for her comprehensive donation to help tackle scleroderma research, support, education and awareness! Posted 04/09/10.

Sandra Nedreau is Reading Voices of Scleroderma books!

The nonprofit International Scleroderma Network thanks Sandra Nedreau for raising scleroderma awareness through the purchase of the Voices of Scleroderma book series, which is based on the hundreds of stories posted on the sclero.org web site. Posted 04/09/10.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 04/05/10.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 04/05/10.

Go to ISN News: March 2010
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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