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July 2010 ISN News

Herman Hicks is Raising Scleroderma Awareness Now!

The nonprofit International Scleroderma Network thanks Herman Hicks for raising scleroderma awareness through the purchase of scleroderma awareness items! Scleroderma Posted 07/27/10.

Jeannie McClelland: ISN Director of Support Services

Jeannie McClelland: ISN Director of Support Services. Jeannie has been promoted from ISN Sclero Forums Manager to ISN Director of Support Services. In this newly formed position she will be responsible for the development, training and management for all of ISN Support Services, including U.S. and worldwide support group and affiliate development, and for our online Sclero Forums, Chats, Blogs, and Videos. Posted 07-14-10. (Also see Jeannie McClelland and Sclero Forums)

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 07/06/10.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 07/04/10.

Pulmonary Hypertension Research Panel in U.S. — Qualified participants will earn $50.00, plus opportunity to earn more!

WWMR, a division of IntrinsiQ, is searching for patients diagnosed with PAH or their caregivers to serve on their research panel. Qualified participants will earn $50.00, plus the opportunity to earn more money by participating in future research studies. Participants must either be diagnosed with PAH, or be a caregiver for someone living with PAH. To learn more, and to see if you qualify, call WWMR toll free at 1-888-947-2339 and select option 4, or email [email protected]. (Also see Pulmonary Hypertension Research Registries) Posted 07/03/10.

Go to ISN News: June 2010
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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