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September 2010 ISN News

Linda Bush is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Linda Bush for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 10/28/10.

In Loving Memory of Patricia Allee

The nonprofit International Scleroderma Network thanks Karyn Philippsen and Family for their donation in loving memory of Patricia A. Allee. Posted 10/28/10.

William Kimbell is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks William Kimbell for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 10/27/10.

Delores Grant is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Delores Grant for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 10/27/10.

ISN New Topic: Scleroderma and Tattoos

ISN New Topic: Scleroderma and Tattoos. Topics covered in this new website section include: medical eligibility for tattoos, tattoos and blood donation, medical complications, social considerations, tattoo remorse, removal and concealers, finding a tattoo parlor, and temporary tattos and henna. People with scleroderma should consult their scleroderma expert prior to getting a tattoo. They may advise some precautions, such as taking antibiotics before the procedure. They may ask you to wait until your illness is stabilized, or your treatments (especially immunosuppressants) are ended. ISN. Posted 10/11/10.

Celeste Perri is Reading Voices of Scleroderma books!

The nonprofit International Scleroderma Network thanks Celeste Perri for raising scleroderma awareness through the purchase of the Voices of Scleroderma book series, which is based on the hundreds of stories posted on the sclero.org web site. Posted 10/08/10.

Evelyn Williams is Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks Evelyn Williams for tackling scleroderma through her recent comprehensive donation for research, support, education and awareness. Posted 09/24/10.

Elizabeth Lee is Reading Voices of Scleroderma books!

The nonprofit International Scleroderma Network thanks Elizabeth Lee for raising scleroderma awareness through the purchase of Voices of Scleroderma Volume 3, which is based on the hundreds of stories posted on the sclero.org web site. Posted 09/24/10.

United Way of Snohomish County is Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks United Way Of Snohomish County for tackling scleroderma through their recent comprehensive donation for research, support, education and awareness. Posted 09/24/10.

McGraw-Hill Companies are Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks McGraw-Hill Companies for tackling scleroderma through their recent comprehensive donation for research, support, education and awareness. Posted 09/24/10.

Terrific Success of ISN Scoring for Scleroderma 5th Annual Fundraiser by Lisa Bulman!

The Scoring for Scleroderma 5th Annual Fundraiser to benefit the nonprofit International Scleroderma Network was a terrific success! We raised over $8,000 to tackle scleroderma and over $30,000 since our first soccer tournament. The tournament was held on Friday, September 17, 2010. Our indoor fields, located at The Bridgewater Dome in Bridgewater, Massachusetts were donated, and our Platinum Sponsor was WWMR/IntrisiQ. We had over 60 players participate and many donated goods. Thanks to everyone -- players and donors, for helping to make this event a fun and enduring event! Posted 09/21/10 by Lisa Bulman, ISN Fundraiser.

Christine Robinson is Raising Scleroderma Awareness Now!

The nonprofit International Scleroderma Network thanks Christine Robinson for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 09/21/10.

Becky Bowman is Raising Scleroderma Awareness Now!

The nonprofit International Scleroderma Network thanks Becky Bowman for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 09/13/10.

In Loving Memory of Carolyn Gullifer

The nonprofit International Scleroderma Network thanks Sandra Stolpa for her donation in loving memory of Carolyn Gullifer. Posted 09/11/10.

Welcome Janet Paulmenn: ISN Sclero eNewsletter Manager

Janet Paulmenn: ISN Sclero eNewsletter Manager. Since my kidney transplant, I have so much energy now that I want to give back to the International Scleroderma Network. I don't know what I would have done without the support of ISN Sclero Forums and all of you in understanding this disease. Posted 09-10-10.

Annette Garris is Reading Voices of Scleroderma books!

The nonprofit International Scleroderma Network thanks Annette Garris for raising scleroderma awareness through the purchase of Voices of Scleroderma Volume 3, which is based on the hundreds of stories posted on the sclero.org web site. Posted 09/09/10.

Jamie K Backus-Kahler is Raising Scleroderma Awareness Now!

The nonprofit International Scleroderma Network thanks Jamie K Backus-Kahler for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 09/06/10.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 09/03/10.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 09/02/10.

Go to ISN: Support
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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