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October 2010 ISN News

Linda Bush is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Linda Bush for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 10/28/10.

In Loving Memory of Patricia Allee

The nonprofit International Scleroderma Network thanks Karyn Philippsen and Family for their donation in loving memory of Patricia A. Allee. Posted 10/28/10.

William Kimbell is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks William Kimbell for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 10/27/10.

Delores Grant is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Delores Grant for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 10/27/10.

(Spanish/Espaņol) TV Video!

Francisco Castellanos, presidente de la Asociación de esclerodermia. (Also see Francisco Castellanos and Asociación Colombiana de Esclerodermia) NTN TV. Posted 10-20-10.

ISN New Topic: Scleroderma and Tattoos

ISN New Topic: Scleroderma and Tattoos. Topics covered in this new website section include: medical eligibility for tattoos, tattoos and blood donation, medical complications, social considerations, tattoo remorse, removal and concealers, finding a tattoo parlor, and temporary tattos and henna. People with scleroderma should consult their scleroderma expert prior to getting a tattoo. They may advise some precautions, such as taking antibiotics before the procedure. They may ask you to wait until your illness is stabilized, or your treatments (especially immunosuppressants) are ended. ISN. Posted 10/11/10.

Celeste Perri is Reading Voices of Scleroderma books!

The nonprofit International Scleroderma Network thanks Celeste Perri for raising scleroderma awareness through the purchase of the Voices of Scleroderma book series, which is based on the hundreds of stories posted on the sclero.org web site. Posted 10/08/10.

ISN New Page: Palliative Care

ISN New Page: Palliative Care. Palliative Care is an individualized, full-service care plan for people who have serious illnesses. The aim of it is to improve the patient's quality of life. You can enroll in a palliative care program without being in hospice. Hospice is for people who are near the end of life and who are no longer pursuing a treatment or cure for their illness; basically it is to make people as comfortable as possible in their remaining days. Hospice always includes palliative care. However, people at any stage of a serious illness can enroll in a palliative care program. Palliative care is a covered benefit by Medicare. It is a wonderful resource for people with systemic scleroderma, to help improve quality of life. Posted 10/07/10.

Christine Robinson is Raising Scleroderma Awareness Again!

The nonprofit International Scleroderma Network thanks Christine Robinson for raising scleroderma awareness again through the purchase of scleroderma awareness bracelets! Posted 10/1/10.

Christine Robinson is Raising Scleroderma Awareness Again!

The nonprofit International Scleroderma Network thanks Christine Robinson for raising scleroderma awareness again through the purchase of scleroderma awareness bracelets! Posted 10/1/10.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers.Posted 10/02/10.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 10/01/10.

Go to ISN News: August 2010
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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