SCLERO.ORG
Search
Scleroderma Newsroom
ISN News Manager: Jo Frowde
Autoimmune
Media Stories
Scleroderma
ISN/Website
ISN News Archive
Archives 2010: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2017 - 2016 - 2015 - 2014 - 2013 - 2012 - 2011 - 2010 - 2009 - 2008 - 2007 - 2006 - 2005 - 2004 - 2003 - 2002

November 2010 ISN News

Patient Story Update: Kristen: Diffuse Scleroderma

(Update) Kristen: Diffuse Scleroderma I am getting happier with my life. I am now separated from my husband and that is a good thing actually…

New Patient Story: Daphne M: Daughter of Limited Systemic Scleroderma Patient

Daphne M: Daughter of Limited Systemic Scleroderma Patient She has had symptoms of reflux, which has caused her to throw up every night for over ten years. Her hands turn blue and are very sensitive to hot and cold. She has been developing ulcers on her fingers too. She was admitted to CCU last week with difficulty swallowing and breathing…

Janet Paulmenn, Thanks for Tackling Scleroderma Now!

We heartily thank Janet Paulmen for her donation to tackle scleroderma this holiday season. Posted 11/18/10.

Linda Monetti is Reading Voices of Scleroderma Books

The nonprofit International Scleroderma Network thanks Annette Garris for raising scleroderma awareness through the purchase of Voices of Scleroderma Volume 3, which is based on the hundreds of stories posted on the sclero.org web site. Posted 11/17/10.

William Kimbell is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks William Kimbell for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/17/10.

Welcome Jo Frowde, ISN Sclero Forums Support Specialist

ISN Welcomes Jo Frowde: ISN Sclero Forums Support Specialist. I am from the United Kingdom and feel very privileged and excited to be part of the International Scleroderma Network. Thankfully I am a naturally upbeat sort of person and hope to be able to offer support and encouragement to other sufferers of this rather bizarre disease! Posted 11-17-10.

Nancy Paul is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Nancy Paul for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/16/10.

Joan Schrimsher is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Joan Schrimsher for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/15/10.

ISN New Pages: Causes of Scleroderma: Silica Exposure

Causes of Scleroderma: Silica Exposure. Silica exposure can cause autoimmune diseases such as lupus, scleroderma, and vasculitis. It can also cause silicosis, kidney disease, lung cancer, tuberculosis, and other airways diseases. Environmental exposure to silica can occur in workers and bystanders in many industries, including agriculture, construction, and potters. ISN. Posted 11/14/10.

ISN New Page: Causes of Scleroderma: Vaccinations

Causes of Scleroderma: Vaccinations. Vaccinations have been suspected as a cause of scleroderma, in a few cases. Hepatitis B vaccine was ruled to cause a case of diffuse scleroderma in a U.S. court. Morphea profunda has been identified at the site of an injection. Trauma is one of the known causes of morphea. Since vaccines are a form of trauma, they may be the cause of morphea, in some cases; that is, the trauma is the issue, not the contents of the vaccine itself. ISN. Posted 11/12/10.

Lynn Goodwin is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Lynn Goodwin for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/12/10.

Melissa Shea is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Melissa Shea for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/11/10.

Michelle Fraser is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Michelle Fraser for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/10/10.

ISN New Pages: Sleep Disorders and Scleroderma

Sleep Disorders and Scleroderma. Systemic Sclerosis (scleroderma) is associated with sleep disorders such as restless leg syndrome. Poor sleep has been found to trigger inflammation and worsen pain. It can lead to depression and make it more difficult to cope with chronic illness. If you are not getting 8 hours of sound sleep each night, if you do not wake up feeling refreshed, or if you sleep more than 10 hours a day, and if any of these conditions have existed for more than 2 weeks, it is time to see your doctor. New pages in this section include Sleep Disorders and Illness, Sleep Apnea, and Sleep Disorder Personal Stories. Posted 11/8/10.

In Loving Memory of Patricia Allee

The nonprofit International Scleroderma Network thanks Gary Allee for his awareness bracelet purchase in loving memory of Patricia A. Allee. Posted 11/05/10.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers.Posted 11/02/10.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 11/01/10.

Go to ISN News: October 2010
 
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Jim Miller, Frances Maude Baldwin Watson and Rubye Mai Blocker Westmoreland.
Thanks to Winn Schillberg for donating to scleroderma research.
Donate or Shop Now
 

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.
 

The most important thing in the world to know about scleroderma is sclero.org!

Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.