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November 2010 ISN News

Patient Story Update: Kristen: Diffuse Scleroderma

(Update) Kristen: Diffuse Scleroderma I am getting happier with my life. I am now separated from my husband and that is a good thing actually…

New Patient Story: Daphne M: Daughter of Limited Systemic Scleroderma Patient

Daphne M: Daughter of Limited Systemic Scleroderma Patient She has had symptoms of reflux, which has caused her to throw up every night for over ten years. Her hands turn blue and are very sensitive to hot and cold. She has been developing ulcers on her fingers too. She was admitted to CCU last week with difficulty swallowing and breathing…

Janet Paulmenn, Thanks for Tackling Scleroderma Now!

We heartily thank Janet Paulmen for her donation to tackle scleroderma this holiday season. Posted 11/18/10.

Linda Monetti is Reading Voices of Scleroderma Books

The nonprofit International Scleroderma Network thanks Annette Garris for raising scleroderma awareness through the purchase of Voices of Scleroderma Volume 3, which is based on the hundreds of stories posted on the sclero.org web site. Posted 11/17/10.

William Kimbell is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks William Kimbell for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/17/10.

Welcome Jo Frowde, ISN Sclero Forums Support Specialist

ISN Welcomes Jo Frowde: ISN Sclero Forums Support Specialist. I am from the United Kingdom and feel very privileged and excited to be part of the International Scleroderma Network. Thankfully I am a naturally upbeat sort of person and hope to be able to offer support and encouragement to other sufferers of this rather bizarre disease! Posted 11-17-10.

Nancy Paul is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Nancy Paul for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/16/10.

Joan Schrimsher is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Joan Schrimsher for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/15/10.

ISN New Pages: Causes of Scleroderma: Silica Exposure

Causes of Scleroderma: Silica Exposure. Silica exposure can cause autoimmune diseases such as lupus, scleroderma, and vasculitis. It can also cause silicosis, kidney disease, lung cancer, tuberculosis, and other airways diseases. Environmental exposure to silica can occur in workers and bystanders in many industries, including agriculture, construction, and potters. ISN. Posted 11/14/10.

ISN New Page: Causes of Scleroderma: Vaccinations

Causes of Scleroderma: Vaccinations. Vaccinations have been suspected as a cause of scleroderma, in a few cases. Hepatitis B vaccine was ruled to cause a case of diffuse scleroderma in a U.S. court. Morphea profunda has been identified at the site of an injection. Trauma is one of the known causes of morphea. Since vaccines are a form of trauma, they may be the cause of morphea, in some cases; that is, the trauma is the issue, not the contents of the vaccine itself. ISN. Posted 11/12/10.

Lynn Goodwin is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Lynn Goodwin for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/12/10.

Melissa Shea is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Melissa Shea for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/11/10.

Michelle Fraser is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Michelle Fraser for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 11/10/10.

ISN New Pages: Sleep Disorders and Scleroderma

Sleep Disorders and Scleroderma. Systemic Sclerosis (scleroderma) is associated with sleep disorders such as restless leg syndrome. Poor sleep has been found to trigger inflammation and worsen pain. It can lead to depression and make it more difficult to cope with chronic illness. If you are not getting 8 hours of sound sleep each night, if you do not wake up feeling refreshed, or if you sleep more than 10 hours a day, and if any of these conditions have existed for more than 2 weeks, it is time to see your doctor. New pages in this section include Sleep Disorders and Illness, Sleep Apnea, and Sleep Disorder Personal Stories. Posted 11/8/10.

In Loving Memory of Patricia Allee

The nonprofit International Scleroderma Network thanks Gary Allee for his awareness bracelet purchase in loving memory of Patricia A. Allee. Posted 11/05/10.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers.Posted 11/02/10.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 11/01/10.

Go to ISN News: October 2010
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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