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February 2011 ISN News

Network for Good

The nonprofit International Scleroderma Network thanks Network for Good for tackling scleroderma through their recent comprehensive donation for research, support, education and awareness, on behalf of MCTD Fund, Rachel Mifsud, and Annette Roland-Robbins. Posted 02/26/2011.

In Loving Memory of Paula McCormack

The nonprofit International Scleroderma Network thanks Christine, Chrissy, Christina, Jane, Bob, Beth, David and Colleen for tackling scleroderma through their recent comprehensive donation for research, support, education and awareness, in loving memory of Paula McCormack. Posted 02/25/2011.

United Way of Snohomish County

The nonprofit International Scleroderma Network thanks the United Way of Snohomish County for tackling scleroderma through their recent comprehensive donation for research, support, education and awareness. Posted 02/25/2011.

New Story: Melissa M: Morphea

Melissa M: Morphea I've had morphea since I was about seven or eight, and I am now twenty-nine. It's over the whole front of my stomach and sides, and patches about as big as my hand on each shin and forearm… Posted 02/25/2011.

Steven Kuehn is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Steven Keuhn for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 02/24/2011.

New Story: Cath: Sjogren's Syndrome

Cath: Sjogren's Syndrome Finally, a diagnosis for all of these (at times) debilitating symptoms… Posted 02/24/2011.

Richard Johnson is Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks Richard Johnson for tackling scleroderma through his recent comprehensive donation for research, support, education and awareness. Posted 02/23/2011.

New Story: Domina: Linear Morphea

Dominica: Linear Morphea They say everything is fine but I think it's only gotten worse and feel that nobody wants to help me… Posted 02/23/2011.

New Story: Missy M: Morphea

Missy M: Morphea By this time it had spread onto my shoulders, down my face, under my breasts, and down my belly. It rapidly went all around my neck, behind my ears and all the way to the tip on my chin… Posted 02/22/2011.

DeAnna Picazo is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks DeAnna Picazo for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 02/15/2011.

New Story: Jess: Linear Scleroderma

Jess: Linear Scleroderma (Cairo, Egypt) It's been twenty years of a battle with the unknown. I am twenty-six and I have linear scleroderma, and I have been reminded of it every single day for twenty years… Posted 02/14/2011.

United Way of Massachusetts Bay and Merrimack Valley

The nonprofit International Scleroderma Network thanks the United Way of Massachusetts Bay and Merrimack Valley for tackling scleroderma through their recent comprehensive donation for research, support, education and awareness. Posted 02/13/2011.

Leah Zwer is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Leah Zwer for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 02/12/2011.

Kristen Scala is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Kristen Scala for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 02/11/2011.

New Story: Rick W: Morphea Scleroderma

Rick W: Morphea Scleroderma I was diagnosed with localized scleroderma by a dermatologist in 1999 at age thirty-three. It started out as what I thought was a small bruise on my abdomen and grew into a shape larger than a dollar bill… Posted 02/10/2011.

Crowdrise is Tackling Scleroderma Now! You're invited to join their exciting fundraiser for scleroderma.

The nonprofit International Scleroderma Network thanks Crowdrise for tackling scleroderma. An anonymous person began a Crowdrise Fundraiser for the ISN, and so far has raised over $1,000! Everyone is invited to join the Crowdrise excitement by donating to the ISN through the Crowdrise portal. Posted 02/10/2011.

Story Update for Sara P: CREST Syndrome

(Update) Sara P: CREST Syndrome I just wanted to update everyone and say that I am still doing just fine. I remain pretty much the same as I have since first diagnosed eleven years ago… Posted 02/09/2011.

Wendi English is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Wendi English for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 02/09/2011.

Patricia Carmean, Thanks for Tackling Scleroderma Now!

We heartily thank Patricia Carmean for her donation to tackle scleroderma. Posted 02/08/2011.

Story Update for Susan L: Diffuse Scleroderma

(Update) Susan L: Diffuse Scleroderma Since it's been five years since my first symptoms, and I have not had any internal organ involvement, I sigh with relief… Posted 02/08/2011.

Sheri Fabro is Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks Sheri Fabro for tackling scleroderma through her recent comprehensive donation for research, support, education and awareness. Posted 02/07/2011.

Wendi English is Reading Voices of Scleroderma Book Series

The nonprofit International Scleroderma Network thanks Wendi English for raising scleroderma awareness through the purchase of Voices of Scleroderma book series (volumes 1-3), which is based on the hundreds of stories posted on the sclero.org web site. Posted 02/06/2011.

Simone Rosenblum, Thanks for Tackling Scleroderma Again, In Loving Memory of Maxine Gail Mackler

We heartily thank Simone Rosenblum for her second donation this year to tackle scleroderma this holiday season, in loving memory of Maxine Gail Mackler. Posted 02/05/2011.

Vicki Bermudez is Reading Voices of Scleroderma Book Series

The nonprofit International Scleroderma Network thanks Vicki Bermudez for raising scleroderma awareness through the purchase of Voices of Scleroderma book series (volumes 1-3), which is based on the hundreds of stories posted on the sclero.org web site. Posted 02/04/2011.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 02/03/2011.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 02/02/2011.

Go to ISN News: January 2011
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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