SCLERO.ORG
Search
Scleroderma Newsroom
ISN News Manager: Jo Frowde
Autoimmune
Media Stories
Scleroderma
ISN/Website
ISN News Archive
Archives 2011: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2016 - 2015 - 2014 - 2013 - 2012 - 2011 - 2010 - 2009 - 2008 - 2007 - 2006 - 2005 - 2004 - 2003 - 2002

April 2011 ISN News

Rebekah Bell is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Rebekah Bell for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/28/2011.

Bruce Bochard is Raising Scleroderma Awareness -- Again!

The nonprofit International Scleroderma Network thanks Bruce Bochard for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/27/2011.

Christine Fonseca is Reading Voices of Scleroderma Book Series

The nonprofit International Scleroderma Network thanks Christine Fonseca for raising scleroderma awareness through the purchase of Voices of Scleroderma book series (volumes 1-3), which is based on the hundreds of stories posted on the sclero.org web site. Posted 04/26/2011.

Lauren Kolowitz is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Lauren Kolowitz for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/25/2011.

Kelsey Magerman is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Kelsey Magerman for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/24/2011.

Jeri Knight is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Jeri Knight for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/23/2011.

Simone Rosenblum, Thanks for Tackling Scleroderma Again, In Loving Memory of Maxine Gail Mackler

We heartily thank Simone Rosenblum for her donation to tackle scleroderma this holiday season, in loving memory of Maxine Gail Mackler. 04/23/2011.

Rachel Schultz is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Rachel Schultz for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/22/2011.

Scleroderma Scam Warning!

There is a phishing scam going on now which targets scleroderma patients, posing as the Scleroderma Family and DNA Registry. The scam sends users to a fake site, sclerodermaregistry.com, and asks them to enter their private data. Contact Marilyn Perry by email, [email protected], for any questions regarding the registry or scam. Posted 04/21/2011. (Also see Scleroderma Family and DNA Registry)

Amy Clark is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Amy Clark for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/21/2011.

Linda Trexler is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Linda F. Trexler for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/20/2011.

Robert Lipton is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Robert Lipton for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/19/2011.

Bruce Bochard is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Bruce Bochard for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/18/2011.

Josh Caves is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Josh Caves for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/17/2011.

Linda Doerflein is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Linda Doerflein for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/16/2011.

Aravindakumar Swaminathan is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Aravindakumar Swaminathan for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 04/15/2011.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 04/15/2011. (Also see: DISTOL Trial)

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 04/15/2011.

Go to ISN News: March 2011
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.