The nonprofit International Scleroderma Network thanks Rose Marie Tartaglia for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 09/20/2011.
Amanda Thorpe has produced another video, entitled Why I Love Sclero Forums -- and Why You Could, Too! Is Sclero Forums the right place for you to get scleroderma support and information, anywhere in the world? Watch this video to find out! (Also see Amanda Thorpe and How to Volunteer) Posted 09-17-11.
The ISN has produced another video, entitled Photos of Scleroderma Symptoms. It includes photos and brief explanations of Raynaud's, digital ulcers, gangrene, digital sympathectomy, and sclerodactyly. It is narrated by Shelley Ensz. (Also see Amanda Thorpe and How to Volunteer) Posted 09-16-11.
Amanda Thorpe has produced another video, entitled Symptoms of Systemic Sclerosis (Scleroderma): Sclerodactyly. When the skin on the fingers become tight, stretched, wax-like, and hardened it is called sclerodactyly. (Also see Amanda Thorpe and How to Volunteer) Posted 09-15-11.
Scleroderma Victoria's Winter/Spring 2011 newsletter is now available online in PDF format. They have a new brochure on dealing with bowel and bladder problems, which is now available and discussed in the newsletter, as well. (ISN). Posted 09/17/2011.
Jo Frowde has been promoted from ISN Sclero Forums Assistant Manager to ISN Sclero Forums Manager. In this new position, she will be responsible for the management, development and training for Sclero Forums. Posted 09/15/2011. (Also see Sclero Forums, and How to Volunteer)
The nonprofit International Scleroderma Network thanks Melissa Lewis for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 09/15/2011.
The nonprofit International Scleroderma Network thanks Susan S. for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 09/10/2011.
The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 09/09/2011.
We thank Janet Paulmenn for her donation to tackle scleroderma, in loving memory of Mary Dell Martin "Bookworm" on Sclero Forums). Posted 09/06/2011.
The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 08/03/2011.
Amanda Thorpe has also become an ISN Video Presenter. Her first video, Scleroderma Heart Involvement, gives a brief overview of heart involvement in systemic sclerosis. (Also see Amanda Thorpe and How to Volunteer) Posted 09-05-11.
We have produced some exciting new videos! Isabella Ensz presents What is Scleroderma?, Types of Scleroderma, and Juvenile Scleroderma. If you would like to be an ISN Video Presenter, volunteer now and fill in "Video Presenter" for title. Existing ISN volunteers can just contact Shelley for more information. Posted 09-06-11.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.