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January 2012 ISN News

New Page: Types of Scleroderma, Indonesian Version

(Indonesian) Types of Scleroderma, was translated by ISN Indonesian Translator, Iona Carina. Posted 01/27/12.

(Indonesian) Jenis-jenis Scleroderma: Ringkasan

Jenis-jenis Scleroderma: Ringkasan. Ada banyak metode yang telah digunakan untuk mengkategorikan berbagai bentuk scleroderma, yang pada akhirnya menimbulkan kebingungan karana banyaknya istilah. Posted 01/27/12.

Featuring: Northwestern Scleroderma Program in Chicago

Northwestern Scleroderma Program in Chicago. This center serves adult scleroderma patients from throughout the Midwest. They are dedicated to providing exceptional care while pursuing research toward a cure for scleroderma. ISN. Posted 01/26/12.

Thanks to McGraw-Hill Companies!

Thanks to McGraw-Hill Companies for their Employee-Giving Campaign donation to tackle scleroderma! 01/26/12.

Featuring: Scleroderma Experts at the Medical University of South Carolina (MUSC)

Scleroderma Experts at the Medical University of South Carolina (MUSC). This is a good center for juvenile scleroderma, for rare scleroderma-like illnesses, and for adults with scleroderma lung involvement. ISN. Posted 01/25/12.

In Honor of Gerald Mackler's 70th Birthday

Thanks to Lisa Hazell for her donation in loving lasting memory of Maxine Gail Mackler and in honor of Gerald Mackler's 70th birthday! 01/25/12.

New Story, Lucia: Scleroderma

Lucia: Scleroderma I was diagnosed with this illness in August of 2011. I am Colombian, 44 years old and have been a resident of the US for the past 6 years… Posted 01/24/12.

New Spanish Story, Lucia: Esclerodermia

(Español/Spanish) Lucia: Esclerodermia Fui diagnosticada con esta enfermedad en agosto de 2011. Soy una mujer colombiana de 44 años y resido en los Estados Unidos desde hace 6… Posted 01/24/12.

Featuring: Scleroderma and Sarcoidosis Patient Care and Research Center at LSU Health Sciences Center

Scleroderma and Sarcoidosis Patient Care and Research Center at LSU Health Sciences Center. This center is interested in providing early diagnosis and treatment for scleroderma patients. ISN. Posted 01/23/12.

ISN Scleroderma Videos (New Page)

ISN Scleroderma Videos is a new page to list all of our videos about scleroderma! Posted 01/22/12.

Update: Kathy Baker: CREST, Systemic Sclerosis

(Update) Kathy Baker: CREST, Systemic Sclerosis. On August 1st the middle finger was amputated. Then I acquired another ulcer on my right hand index finger tip. On August 10th, this finger was partially amputated… Posted 01/21/12.

Featuring: The Scleroderma and Vasculitis Center at the Hospital for Special Surgery in New York City

The Scleroderma and Vasculitis Center, Led by Dr. Robert Spiera at the Hospital for Special Surgery in New York City. This center treats adults with any type of scleroderma (either localized or systemic). ISN. Posted 01/20/12.

What did April Turner order even more of?

The nonprofit International Scleroderma Network thanks April Turner for ordering even more awareness bracelets this month! We thank her for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 01/20/12.

Featuring: Scleroderma Expert at Istanbul University in Turkey

Scleroderma Expert at Istanbul University in Turkey. This center is led by Dr. Murat Inanc. They treat adults with any type of scleroderma (not juveniles). ISN. Posted 01/19/2012.

In Loving Memory of Maxine Gail Mackler

Thanks to Gerald Mackler for his donation in loving lasting memory of Maxine Gail Mackler. 01/19/12.

What kind of bracelet is Luz Ochoa wearing?

The nonprofit International Scleroderma Network thanks Luz Ochoa for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 01/18/12.

Featuring: Scleroderma Experts at the Royal Adelaide Hospital in South Australia

Scleroderma Experts at the Royal Adelaide Hospital in South Australia. This scleroderma center is led by A/Prof. Susanna Proudman. They treat adults with any type of scleroderma (not juveniles). ISN. Posted 01/17/2012.

What is Rose Adkins Doing Now?

We thank Rose Adkins for her comprehensive donation to tackle scleroderma! There's no better or more cost effective way to tackle scleroderma than through the nonprofit ISN at sclero.org! 01/17/12.

ISN Thanks Janey Willis!

We thank Janey Willis for her comprehensive donation to tackle scleroderma. There's no better or more cost effective way to tackle scleroderma than through the nonprofit ISN at sclero.org! 01/16/12.

What color is April Turner's pretty new bracelet?

The nonprofit International Scleroderma Network thanks April Turner for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 01/15/12.

Jerry Rifkin is Tackling Scleroderma Now!

The International Scleroderma Network thanks Jerry Rifkin for his donation to tackle scleroderma. Posted 01/14/12.

What on earth did Patsy Lundberg do?

The International Scleroderma Network thanks Patsy Lungberg for her donation to tackle scleroderma! Posted 01/13/12.

Featuring: Scleroderma Center at Rutgers Robert Wood Johnson Medical Group (formerly UMDNJ)

Rutgers Robert Wood Johnson Scleroderma Program. This scleroderma center is led by Dr. Vivien Hsu, who has over 25 years of experience in this field. This is a good center for adults who have any type of scleroderma, either localized (such as linear or morphea) or systemic. ISN. Posted 01/12/12.

Our Thanks to Betty Benedict!

The International Scleroderma Network thanks Betty Benedict for her generous donation to tackle scleroderma research, support, education and awareness! Posted 01/11/12.

Sigma-Tau Pharmaceuticals is Tackling Scleroderma Now!

The International Scleroderma Network thanks Sigma-Tau Pharmaceuticals for their sponsorship support! Posted 01/10/12.

What is Janet Paulmenn doing now?

The International Scleroderma Network thanks Janet Paulmenn for her abiding donations to tackle scleroderma! Posted 01/09/12.

Featuring: Scleroderma Experts in Denver, Colorado

National Jewish Health and University of Colorado Scleroderma Clinics. This center is for adults with systemic scleroderma. Dr. Fischer is very involved in clinical trials for scleroderma lung disease. ISN. Posted 01/09/12.

How did Sarah Inglis get that pretty new bracelet?

The nonprofit International Scleroderma Network thanks Sarah Inglis for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 01/08/12.

Happy Birthday, Gerald Mackler!

In honor of Gerald Mackler's 70th Birthday, the following people have donated in his honor, and in loving memory of Maxine Gail Mackler: Karen Fodera, Simone Rosenblum, Linda Menashe, and Myron Medine. 01/07/12.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 01/08/12.

Rose Adkins is Reading the Voices of Scleroderma Books!

The nonprofit International Scleroderma Network thanks Rose Adkins for raising scleroderma awareness through the purchase of Voices of Scleroderma Volume 3, which is based on the hundreds of stories posted on the sclero.org web site. Posted 01/06/12.

Featuring Scleroderma Specialty Clinic in Grand Rapids, Michigan

The Scleroderma Specialty Clinic in Grand Rapids treats all types of scleroderma and all ages, which makes them an especially good center for juvenile (childhood) scleroderma morphea, linear, en coup, or systemic). ISN. Posted 01/06/12.

We Remember Roger (Birdman) Ford

Jason Ford and Cari Mull have donated in loving lasting memory of Roger (Birdman) Ford. Many of us in Sclero Forums will recall that Roger passed away due to complications of a stem cell transplant for scleroderma. 01/05/12.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 01/05/12.

Featuring Scleroderma Center at Boston University School of Medicine (BUMC)

The Scleroderma Center at Boston University School of Medicine (BUMC). This center is led by Dr. Robert Simms, and it is recognized as an international leader for the diagnosis and treatment of adults who have systemic sclerosis. ISN.

ISN Thanks Jerry and Susan Molitor!

We thank Jerry and Susan Molitor for their comprehensive donation to tackle scleroderma. There's no better or more cost effective way to tackle scleroderma than through the nonprofit ISN at sclero.org! 01/04/12.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 01/03/12.

Go to ISN News: December 2011
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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