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January 2013 ISN News

ISN Video: Overview of Morphea Scleroderma by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Overview of Morphea Scleroderma. Morphea is a type of localised scleroderma. It affects the skin and sometimes underlying muscles and joints, which can cause disability, but it is not life threatening. (Also see Scleroderma Videos, and Amanda Thorpe). Posted 01/12/2013.

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 01/19/2013.

Our Thanks to Betty Benedict!

The International Scleroderma Network thanks Betty Benedict for her generous ongoing support to tackle scleroderma research, support, education and awareness! Posted 01/19/2013.

Sigma-Tau Pharmaceuticals is Tackling Scleroderma Now!

The International Scleroderma Network thanks Sigma-Tau Pharmaceuticals for their sponsorship support! Posted 01/16/2013.

Tina Haner is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Tina Haner for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 01/15/2013.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 01/14/2013.

ISN Video: Overview of Linear Scleroderma by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Overview of Linear Scleroderma. Linear scleroderma is a line of thickened skin which can affect the bones and muscles underneath it, thus limiting the motion of the affected joints and muscles. It most often occurs in the arms, legs, or forehead, and may occur in more than one area. (Also see Scleroderma Videos, and Amanda Thorpe). Posted 01/12/2013.

Jo Frowde: ISN News Guide for Scleroderma Medical News

Jo Frowde has been promoted to ISN News Guide for Scleroderma Medical News. She has been an Assistant News Guide since June 2011. She will be researching, selecting, and preparing current medical abstracts for our Newsroom and web site. Jo is also Manager of Sclero Forums and a Sclero Forums Chat Host. Posted 01/10/2013. (Also see Sclero Forums, and How to Volunteer)

ISN Video: Overview of Localized Scleroderma by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Overview of Localized Scleroderma. Linear and morphea scleroderma affect the skin and sometimes the underlying muscles and bones, but do not reduce a person's life expectancy. (Also see Scleroderma Videos, and Amanda Thorpe). Posted 01/09/2013.

Rose Adkins is Tackling Scleroderma Now!

We thank Rose Adkins for her comprehensive donation to tackle scleroderma! There's no better or more cost effective way to tackle scleroderma than through the nonprofit ISN at sclero.org. 01/07/2013.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 01/06/2013.

Tena Haner is Reading the Voices of Scleroderma Books!

The nonprofit International Scleroderma Network thanks Tena Haner for raising scleroderma awareness through the purchase of books in the Voices of Scleroderma book series, which is based on the hundreds of personal stories posted on the sclero.org web site, as well as articles by world scleroderma experts. Posted 01/05/2013.

Arnold Slotkin, Thanks for Tackling Scleroderma Now, In Loving Memory of Marta Marx

We heartily thank Arnold Slotkin for his donation to tackle scleroderma this holiday season, in loving memory of Marta Marx. Posted 01/04/2013.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 01/03/2013.

Go to ISN News: December 2012
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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