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August 2013 ISN News

Carol Lieberbaum is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Carol Lieberbaum for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 08/28/2013.

In Loving Memory of Derek Wade Smith

We thank John and Brenda Canup for their donations to tackle scleroderma, in memory of Derek Wade Smith. 08/23/2013.

Tamara Rorex-Sauve is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Tamara Rorex-Sauve for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 08/20/2013.

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 08/19/2013.

Our Thanks to Betty Benedict!

The International Scleroderma Network thanks Betty Benedict for her generous ongoing support to tackle scleroderma research, support, education and awareness! Posted 08/19/2013.

Diffuse Scleroderma? Earn $150 with one-hour in-home research study on East Coast U.S.

Research Study for Diffuse Scleroderma Patients. If you live on the East Coast of the U.S., you may be eligible to earn $150 for this one-hour research study, in your own home. Participants will have blood work and urinalysis and answer a medical history questionnaire. The Plasma Source. Posted 08/18/2013.

Our Thanks to United Way of Snohomish County!

The International Scleroderma Network thanks United Way of Snohomish County for their generous donation to tackle scleroderma research, support, education and awareness! Posted 08/16/2013.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 08/14/2013.

ISN Video: Raynaud's Prevention by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Raynaud's Prevention. The video includes many handy tips for how to avoid attacks of Raynaud's, including tips for clothing and shopping. (Also see Scleroderma Videos, and Amanda Thorpe). Posted 08/13/2013.

Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

Medical SymbolWould you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 08/09/2013. (Also see Current Clinical Trials and Scleroderma Experts)

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 08/06/2013.

Did you know you can help raise scleroderma awareness?

Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. Posted 08/04/2013.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 08/02/2013.

Go to ISN News: July 2013
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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