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July 2014 ISN News

Angelina Giobbi is Reading the Voices of Scleroderma Books!

The nonprofit International Scleroderma Network thanks Angelina Giobbi for raising scleroderma awareness through the purchase of the Voices of Scleroderma book series, which is based on the hundreds of personal stories posted on the sclero.org web site, as well as articles by world scleroderma experts. Posted 07/29/2014.

Updated: Scleroderma FAQ by Ed Harris

The recently updated Scleroderma FAQ is an educational website that covers scleroderma diagnosis and treatment. There are also supplemental technical articles on ANA and antibody testing and scleroderma-related blood hyperviscosity research and treatments. (Also see Scleroderma Webmaster's Association) Posted 07/24/2014.

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 07/21/2014.

Lorie Dearinger is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Lorie Dearinger for raising awareness of scleroderma with scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other. Posted 07/20/2014.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 07/14/2014.

Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 07/09/2014. (Also see Current Clinical Trials and Scleroderma Experts)

Did you know you can help raise scleroderma awareness?

Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. Posted 07/07/2014.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 07/06/2014.

Donald Farmer is Reading the Voices of Scleroderma Books!

The nonprofit International Scleroderma Network thanks Donald Farmer for raising scleroderma awareness through the purchase of the Voices of Scleroderma book series, which is based on the hundreds of personal stories posted on the sclero.org web site, as well as articles by world scleroderma experts. Posted 07/05/2014.

Paul Phifer is Tackling Scleroderma Now!

The International Scleroderma Network thanks Paul Phifer for tackling scleroderma research, support, education and awareness! Posted 07/04/2014.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 07/02/2014.

Go to ISN News: June 2014
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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