SCLERO.ORG
Search
Scleroderma Newsroom
ISN News Manager: Jo Frowde
Autoimmune
Media Stories
Scleroderma
ISN/Website
ISN News Archive
Archives 2014: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2016 - 2015 - 2014 - 2013 - 2012 - 2011 - 2010 - 2009 - 2008 - 2007 - 2006 - 2005 - 2004 - 2003 - 2002

November 2014 ISN News

In Loving Memory of Yvonne Monk

The International Scleroderma Network thanks Deneese Betz, Jamie Boyd-Hamilton, Ilene Frost, Janice Gross, Betty Lauer, Barbara L. Miller, Timothy Miller, Kay E. Mosher, Terri Neuenfeldt, Lillian Novak, Susan Ontiveros, Leona Osborne, Connie Schafer, Alaine Shock, Rhonda Strong, and Karen Zinck for their generous donation to tackle scleroderma research in loving memory of Yvonne Monk. Posted 11/27/2014.

In Loving Memory of Joshua Narins

The International Scleroderma Network thanks Cryn Brissman, Yang Cao, Marilyn Oskin, and Sharon Rapone for their generous donation to tackle scleroderma research in loving memory of Joshua Narins. Posted 11/26/2014.

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 11/21/2014.

In Loving Memory of Nolan LaTourelle

The International Scleroderma Network thanks Shelley Ensz for her generous donation to tackle scleroderma research in loving memory of her son, Nolan LaTourelle, who passed away suddenly on November 10th. Nolan was a co-founder of the ISN and is dearly missed by all. Posted 11/16/2014.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 11/14/2014.

Our Thanks to United Way of Central New Mexico!

The International Scleroderma Network thanks United Way of Central New Mexico for their generous donation to tackle scleroderma research, support, education and awareness! Posted 11/11/2014.

Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 11/09/2014. (Also see Current Clinical Trials and Scleroderma Experts)

Did you know you can help raise scleroderma awareness?

Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. Posted 11/07/2014.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 11/06/2014.

Scleroderma? Shop at AmazonSmile!

Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network! Posted 11/04/2014.

New Topic: Taste and Smell Impairments in Systemic Sclerosis by Jo Frowde

Taste and Smell Impairments. Taste and smell disorders can be caused by many things. Surprisingly, losing a sense of smell is a strong indication of poor health, so it warrants a trip to the doctor to identify the underlying cause. ISN. Posted 11/03/2014.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 11/02/2014.

Go to ISN News: October 2014
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.