Quality of Life
Pediatric Lupus refers to any form of lupus that onsets during childhoood. It generally begins with vague symptoms like weakness, joint pain, weight loss, fatigue and/or rashes. After a few months, more serious symptoms may set in.
Differences in disease phenotype and severity in systemic lupus erythematosus (SLE) across age groups. Direct comparison of juvenile–onset SLE (JSLE) with adult–onset SLE suggest an aggressive phenotype of disease with a worse outcome in patients with JSLE and emphasizes the importance of careful follow–up in this population. PubMed, Lupus, 05/04/2016.
Systemic Lupus Erythematosus in Children and Teens. Lupus is a disease that is diagnosed by a combination of at least four physical symptoms and/or blood test abnormalities. American College of Rheumatology.
Common symptoms of juvenile onset systemic lupus erythematosus may include arthritis, rashes, blood disorders, mouth or nose sores, seizures, fever, fatigue, and heart, lung, or kidney problems.
Research May Help Clinicians Improve Quality of Life among Children with Lupus. Using the PROMIS questionnaire in children and adolescents with lupus allows clinicians to better design treatment plans for their patients, improve communication and overall management of disease and ultimately have a positive impact on a patient's quality of life. Lupus Foundation of America, 04/14/2014.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
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