Lichen Sclerosus or Lichen Sclerosus et Atrophicus

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Patient Stories

Overview: What is Lichen Sclerosus?

Lichen Sclerosus KaleidoscopeLichen sclerosus is also known as lichen sclerosis or lichen sclerosus et atrophicus. It is a painful skin condition that typically affects the genitals (vulva or penis) and anus.

Lichen Sclerosus et Atrophicus. Background, symptoms and treatments. Includes photos in Multimedia Library section. Medscape.


Content Warning: The following link includes explicit medical photos which are not suitable for children: Photos of Lichen Sclerosus et Atrophicus. Medscape

Treatments for Lichen Sclerosus

For UVA1 treatment, first contact your scleroderma expert to see if it they will recommend it for you. If they recommend and prescribe it for you, try to find UVA1 facilities near you. Some dermatology offices (usually large offices or with major health centers) have UVA1 equipment (not UVB). It may also be possible to buy UVA1 phototherapy equipment for home use. It is manufactured by Daavlin and distributed worldwide. Home users must be monitored by a physician, who will prescribe the necessary dosage and monitor for possible side-effects, such as skin cancer.

A case of cutaneous lichen sclerosus et atrophicus (LSA) effectively treated by extracorporeal photochemotherapy (ECP). The fact that ECP is effective in LSA, graft-versus-host disease (GVHD), erosive lichen planus, and scleroderma strengthen the hypothesis that there is a common link between these four conditions. Wiley. Photodermatology, Photoimmunology & Photomedicine, 7 May 2013. (Also see Graft-Versus-Host Disease)

Clinical evaluation of vulvar lichen sclerosus: case series. The first-line treatment is topical-potent or ultra-potent corticosteroids in the treatment of lichen sclerosis. Vulvar lichen sclerosis may be associated with autoimmune and thyroid diseases. Kazandi M. (PubMed) Eur J Gynaecol Oncol, 2010;31(5):555-8.

Treatment of oral lichen sclerosus with 1% pimecrolimus cream. We report on a 7-year-old Korean girl with a well-demarcated 1.2x1.2 cm atrophic white plaque with an erythematous border and focal telangiectasia on the left vermillion lip, extending to the labial mucosa. Kim CY. (PubMed) Ann Dermatol, 2010 Aug;22(3):326-9.

Lichen sclerosus (LS): treatment and follow-up at the departments of gynaecology and dermatology. Although no hospital guidelines existed, management of patients with LS agreed with current recommendations in the literature, although differences in secondary and supportive therapy existed owing to differences in expertise. The relatively high percentage of patients treated by both specialties with a high frequency of visits emphasizes the need for a multidisciplinary clinic for vulvar disease. van der Avoort IA. (PubMed) J Low Genit Tract Dis, 2010 Apr;14(2):118-23.

Efficacy of UVA1 phototherapy in 230 patients with various skin diseases. Good therapeutic effects of UVA1 therapy were shown in patients with atopic eczema, scleroderma, lichen sclerosus et atrophicus, keratosis lichenoides chronica, prurigo nodularis and with cutaneous T-cell lymphoma. MS Academic Search.


Psoriasis and concomitant fibrosing disorders: Lichen sclerosus, morphea, and systemic sclerosis. In this population, a predisposition toward autoimmunity is seen as 38.5% of patients had a personal history of a third concomitant autoimmune disease, in addition to psoriasis and fibrosing disorder, whereas 42.3% reported a history of a first-degree relative with an autoimmune disease. Journal of the American Academy of Dermatology Volume 67, Issue 5 , Pages 1079-1083, November 2012. (Also see Psoriasis, Morphea, Systemic Sclerosis, and Multiple Autoimmune Syndrome)

Epstein-Barr virus (EBV) and human papillomavirus (HPV) infection in vulvar lichen sclerosus (LS). Our results showed no relationship between HPV and LS. This result is in accordance with the literature. We have found 26.5% of EBV in our samples. This is a preliminary study, and the follow-up of these patients will elucidate whether EBV could play a role in cases of LS. Aidť S. (PubMed) J Low Genit Tract Dis, 2010 Oct;14(4):319-22.

Support Groups for Lichen Sclerosus

National Lichen Sclerosus Support Group of the United Kingdom. Established in 1997, we provide support on an international level. It is not known what causes LS but it has been found that there is a connection between LS and thyroid disease, vitiligo and other autoimmune diseases. NLSSG

(Nederland/Dutch) Lichen SclerosuspatiŽnten, Nederland. De oorzaak is tot op heden onbekend. Men neemt aan dat het een auto-immuunziekte van de huid is en er lijkt verband te bestaan met andere auto-immuunziekte zoals schildklieraandoeningen, diabetes mellitus (suikerziekte), systemische lupus erythematodes (SLE), sclerodermie, vitiligo en een bepaalde vorm van bloedarmoede. LS Nederland.

Lichen Sclerosus Patient Stories

Anita: Lichen Sclerosus et Atrophicus My concern is that it is spreading all over my body: both legs, my back, my neck and moving toward my face...

Charmaine C: Lichen Sclerosus and Scleroderma Soon multiple spots developed across my abdomen, with a few stray ones on my forearms and more on the left leg...

Charmaine J: Lichen Sclerosus Atrophy (LSA) My skin is very hard and has no elasticity so sitting, laying, or riding in a car are uncomfortable...

Christine: Morphea and Lichen Sclerosus et Atrophicus I would love to know if there are any other solutions out there. Even ways to cover up a bit when I am in my bathing suit...

Cnette: Lichen Sclerosis et Atrophicus/Morphea Unfortunately I tried to relieve myself from the itching with over the counter products which did not work...

Connie D: Morphea Scleroderma At age sixteen I developed what I thought were bruises on the biceps of both arms...

Jenny M: Morphea Scleroderma I was told it was a fungus, then that it was clearly all in my head. I went to a dermatologist who told me I had vitiligo, and then that it was lichen sclerosis...

Kon: Lichen Sclerosus et Atrophicus The doctor told me to use tacrolimus ointment and take plaquenil pills. I had an improvement the first two months, but the condition still remains...

Maggie M: Lichen Sclerosus et Atrophicus and Generalized Morphea I had to seek medical help when I realized that it was spreading and getting considerably worse...

Tutter H: Lichen Sclerosus Since this is an autoimmune disorder, I have no idea how long this relief will last or if it will completely go away...

Vali: Mother of Linear Scleroderma Patient (Italy) A dermatologist diagnosed her with Linear Scleroderma, but another one said it was Linear Lichen Planus. My daughter's feet, when she walks, turn inside, and she is often warm, but doesn't have a fever...

(Italiano) Vali: Sclerodermia Lineare (Italia) Un dermatologo a diagnosticato una Sclerodermia Lineare. Un'altro invece: -Lichen Planus Lineare. Mia figlia ha i piedi che quando cammina li butta in dentro, e si sente spesso accaldata ma febbre non ne ha...

Go to Diseases Similar to Scleroderma: Scleredema
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