ISN's Book: Voices of Scleroderma Volume 1

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Stories in 5 Languages
Stories from 16 Countries
Book Topics
Volume 1 Experts

Sclero Books

Bring home to your family and friends with our books that will captivate and inform them about scleroderma with the ISN's Voices of Scleroderma, Vol. 1Volume1. It's a great book for scleroderma caregivers or to enlighten those who just don't understand that you are really sick.

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This book by the nonprofit International Scleroderma Network (ISN) features over 100 patient, caregiver and survivor stories from this website, from 16 countries, and in 5 languages!

Professional contributors include Dr. Joseph Korn, Gary Barg, Dr. Magdalena Dziadzio, Dr. Asim Iqbal Qureshi, and Dr. Thomas Lehman.

Story topics include Caregivers and Survivors, Difficult Diagnosis, Diffuse Scleroderma, CREST, Limited Scleroderma, Linear/Localized, Morphea, Overlap and MCTD, Lupus, UCTD, Pulmonary Fibrosis, Fibromyalgia, Polymyositis, and Juvenile Scleroderma (just to name a few!)

For a complete listing of other places to buy these books, for individuals, booksellers and libraries, by country and currency, see Voices of Scleroderma: Availability by Country/Currency.

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Voices of Scleroderma Volume 1
ISBN 0-9724623-0-9
Library of Congress Control Number (LCCN): 2004105617
by the International Scleroderma Network
Editors, Judith R. Thompson and Shelley L. Ensz

Volume 1 offers 104 stories altogether; in English (91 stories), Greek (1), Italian (10), Polish (1) and Romanian (1) along with an English translation for each story. ISN English translators for the stories in the book include Dr. Magdalena Dziadzio, Kevin Howell, Krista Lurtz, and Dimitra Stafilia.

Story authors are from 16 countries : Australia, Canada, Greece, England, India, Italy, Iran, Jordan, New Zealand, Norway, Pakistan, Peru, Poland, Puerto Rico, Romania, and 32 states in the United States.

The Introduction to Scleroderma is by renowned scleroderma expert Dr. Joseph Korn, who passed away shortly after the first edition of this book was published. Volume One also features articles by Dr. Magdalena Dziadzio, Dr. Thomas Lehman, Dr. Asim Iqbal, and Gary Barg.

Dr. Joseph Korn was Chief of the Rheumatology Section of the Boston University Arthritis Center. He was a highly renowned scleroderma expert with many research studies and professional publications to his credit. His lead-in article for Volume 1, entitled "Introduction to Scleroderma", clearly explains this complex disease.

Dr. Magdalena Dziadzio is Medical Advisory Chair of the International Scleroderma Network. She obtained her medical degree in Poland. She developed her knowledge about scleroderma working with Prof. Carol Black and her team at the Department of Rheumatology, Royal Free Hospital, London.

Dr. Thomas Lehman is Chief of the Division of Pediatric Rheumatology for The Hospital for Special Surgery in New York. He is a widely recognized expert in the field of Juvenile Scleroderma, which is any form of scleroderma that onsets during childhood. Dr. Lehman clearly explains Juvenile Scleroderma in the introduction for the chapter of juvenile scleroderma patient and caregiver stories.

Dr. Asim Iqbal Qureshi is with the Department of Obstetrics and Gynecology at Nishtar Hospital in Multan, Pakistan. He is also the creator of the online presentation for Scleroderma & Pregnancy. He developed that presentation for his department over their concern for a pregnant scleroderma patient. In this book, Dr. Iqbal shares his story about the case of the unfortunate fetus.

Gary Barg is editor-in-chief of Today's Caregiver Magazine, and founder of He is a very sought-after keynote speaker for many conferences on health and caregiving. His first-hand experience as a caregiver is parlayed into a fine introduction to our chapter of caregiver and survivor stories.

Ione Bridgman, ISN Artist, painted the fabulous lighthouse for the cover of Voices of Scleroderma Volume 1. Sherrill Knaggs, ISN Artist, created the digital image from Ione's painting.

Judith Rose Thompson, co-editor, is ISN Archive Committee Chair. She is the author of three fiction novels. Her latest novel, Mind Blindness, was released in July 2002. Judith volunteered to preserve the stories and to create this book series to benefit the International Scleroderma Network.

Shelley Ensz is also co-editor of the book. She is Founder and President of the International Scleroderma Network, the SCLERO.ORG website and the Scleroderma Webmaster's Association.

Voices of Scleroderma Volume 1Voices of Scleroderma Volume 1 is available through Amazon, and you can preview the Table of Contents and Index with the Amazon "search in" feature!

Need currency conversion? Voices of Scleroderma Volume 1 is also available through, with international currency conversion rates. Put the book in their Shopping Bag. Then underneath in the Price field, Convert Currency and it will give the currency conversion rate that day.

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Go to Voices of Scleroderma: Volume 2
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


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