What is scleroderma really like?! That's a very tough question since scleroderma symptoms and progression vary greatly from patient to patient!
That's why we invited over 100 scleroderma patients, caregivers and leading scleroderma experts throughout the world to explain what scleroderma to answer your questions in gripping, touching and educational articles in Voices of Scleroderma, Volume 2. (Amazon Books).
Contributing professionals for Voices of Scleroderma, Volume 2. include Professor Carol Black, Dr. Christopher Denton, Dr. L. Nandini Moorthy, Dr. Maria Trojanowska, Kevin Howell, and Dr. Vanessa Malcarne.
For a complete worldwide listing of other places to buy these books, for individuals, booksellers and libraries, by country and currency, see Voices of Scleroderma: Availability by Country/Currency.
Professor Carol Black, MD, FRCP, CBE, is the Director of the Department of Rheumatology at Royal Free Hospital in London, England, and a renowned expert in scleroderma. The department has an active research program. For her lifetime work she was recently honored with the prestigious award of Commander of the British Empire. Professor Black is also President of the Royal College of Physicians in London. She cares deeply about her patients and is held in the highest esteem by her staff.
Dr. Maria Trojanowska is Associate Professor, Division of Rheumatology and Immunology at the Medical University of South Carolina. The main area of research in her laboratory is regulation of extracellular matrix (ECM) deposition in healthy tissues and its dysregulation in diseases.
Kevin Howell is a Clinical Scientist for Professor Black at the Royal Free Hospital in London. He began working in the field of scleroderma in 1991, and uses the techniques of capillaroscopy and infrared thermography.
Dr. Vanessa Malcarne is an Associate Professor in Psychology at San Diego State University (SDSU). She is also a core member of the graduate faculty of the SDSU/UCSD Joint Doctoral Program in Clinical Psychology, and a member of the Moore NCI Comprehensive Cancer Center at UCSD. Her research focus is adjustment to chronic illness in patients, spouses, and children.
Dr. L. Nandini Moorthy is an Assistant Professor of Pediatrics at Rutgers Robert Wood Johnson Medical School in New Jersey. As a pediatric rheumatologist, she is interested in taking care of children and improving their quality of life.
Judith Thompson Devlin, co-editor, is ISN Archive Committee Chair. Judith volunteered to preserve the sclero.org stories and to create this book series to benefit the International Scleroderma Network.
Shelley Ensz is also co-editor of the book. She is Founder and President of the International Scleroderma Network, the SCLERO.ORG website, the Scleroderma Webmaster's Association, and of EdinaWebDesign.com.
Judith Thompson Devlin, co-editor of the Voices of Scleroderma book series, signed and shipped 125 complimentary copies of Voices of Scleroderma, Volume 2. , which were mailed out on September 16, 2004.
These signed copies of the first edition were sent to everyone who contributed a story or worked on Volume 2. This tremendous book features top notch medical and support information for scleroderma. Posted 09-22-04.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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