|Types of Scleroderma Handled?
Ages: Not Clarified
Insurance: Most Accepted
Dr. Steen was profiled by PHA Online University and she has been involved with more than 50 published studies and articles and many patient organization activities. It is an excellent center for adult systemic scleroderma patients who have lung involvement, such as pulmonary hypertension.
Scleroderma often takes many years to diagnose because of insidious onset, vague initial symptoms, and low physician and public awareness. It is typically diagnosed and treated by rheumatologists, but because it is a rare and very complex disease, there are only a few dozen scleroderma specialists in the United States. Expert care can be crucial for proper screening, diagnosis, patient education, clinical trials, and treatment. (Also see: What is Scleroderma?, Diagnosis of Scleroderma and Scleroderma Expert Directory)
Department of Medicine/Rheumatology
MedStar Georgetown University Hostpial
Pasquerilla Healthcare Center 6th Floor
3800 Reservoir Road NW
Washington, DC 20007
Although there may be other doctors in this clinic or division, these are the only ones listed specifically as scleroderma experts by the center as of our last update.
Virginia Steen, MD
This center has not yet reported the types of scleroderma that they treat, such as localized (morphea, linear, en coup) and (limited or diffuse) systemic sclerosis. (Also see Difficult Diagnosis and Types of Scleroderma)
This center has not yet specified whether or not they treat scleroderma patients of all ages (both children and adults.)
When attempting to make an appointment for a child, be sure to request a pediatric rheumatologist within the scleroderma clinic.
The MedStar Georgetown University Hospital web site says that they accept almost all insurance plans. Please verify insurance coverage.
This center is a member of the Scleroderma Clinical Trials Consortium (SCTC), which means that they participate in SCTC peer-reviewed international clinical trials for scleroderma.
05/08/2016: Overview added. JEF
02/05/2016: Contact information updated.
11/01/11: Page published.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
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SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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