|Types of Scleroderma: All
Ages: Adult Only
Insurance: Medicare, Maryland Medicaid*
This center which is led by Dr. Frederick M. Wigley, specializes in the care of patients with scleroderma and related conditions. Johns Hopkins is a major U.S. medical center that ranks tops in many fields, including rheumatology. They diagnose and treat adults with all types of scleroderma.
Scleroderma often takes many years to diagnose because of insidious onset, vague initial symptoms, and low physician and public awareness. It is typically diagnosed and treated by rheumatologists, but because it is a rare and very complex disease, there are only a few dozen scleroderma specialists in the United States. Expert care can be crucial for proper screening, diagnosis, patient education, clinical trials, and treatment. (Also see: What is Scleroderma?, Diagnosis of Scleroderma and Scleroderma Expert Directory)
Johns Hopkins Bayview Medical Center
Division of Rheumatology
School of Medicine
5501 Hopkins Bayview Circle, 1B.07
Baltimore, MD 21224
Note about appointments. Required Record review before schedule: 443 267 0090 fax all medical records and signed statements from the referring doctor.
Johns Hopkins Scleroderma Center. The Johns Hopkins Scleroderma Center specializes in the care of patients with scleroderma and related conditions. Our doctors are attending physicians and full time faculty members at the Johns Hopkins University School of Medicine.
Although there may be other doctors in this clinic or division, these are the only ones listed specifically as scleroderma experts by the center as of our last update.
Frederick M. Wigley, MD
Robert A. Wise, MD (Pulmonology)
Laura Hummers, MD
Julie Paik MD., M.H.S.
Zsuzsanna McMahan MD, M.H.S.
Ami Aalok Shah M.D.
This center reports that they diagnose and treat all types of scleroderma, including localized (morphea, linear, en coup) and (limited or diffuse) systemic sclerosis. (Also see Difficult Diagnosis and Types of Scleroderma)
This center reports that they are only able to treat adult scleroderma patients (age 18 or over).
* This center accepts Medicare, and Maryland Medicaid. However they do not currently take out-state Medicaid, nor any Medicare Advantage plans.
This center is a member of the Scleroderma Clinical Trials Consortium (SCTC), which means that they participate in SCTC peer-reviewed international clinical trials for scleroderma.
05/08/2016: Overview added. JEF
03/13/2016: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator. Note about appointments and Dr's Julie Paik, Zsuzsanna McMahan and Ami Aalok Shah added. JEF
01/06/2016: Appointment phone number updated. SLE
12/12/2011: Page published.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
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Edina, MN 55435-4702 USA
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