|Types of Scleroderma: All
Ages: Only Adults
This center is led by Dr. Robert Spiera and diagnoses and treats adults with any form of scleroderma, such as limited or diffuse systemic sclerosis and localized forms such as such as morphea, linear, and en coup de sabre. Scleroderma has become a major focus of investigations at the Hospital for Special Surgery.
Scleroderma often takes many years to diagnose because of insidious onset, vague initial symptoms, and low physician and public awareness. It is typically diagnosed and treated by rheumatologists, but because it is a rare and very complex disease, there are only a few dozen scleroderma specialists in the United States. Expert care can be crucial for proper screening, diagnosis, patient education, clinical trials, and treatment. (Also see: What is Scleroderma?, Diagnosis of Scleroderma and Scleroderma Expert Directory)
Hospital for Special Surgery
535 East 70th Street
New York, NY 10021
Scleroderma and Vasculitis Center. Scleroderma has become a major focus of investigations at the Hospital for Special Surgery. This was facilitated by the establishment of the Rudolph Rupert Scleroderma Research Center in 2005. Hospital for Special Surgery.
Although there may be other doctors in this clinic or division, these are the only ones listed specifically as scleroderma experts by the center as of our last update.
Robert Spiera, MD
Mary Crow, MD
Jessica Gordon, MD
This doctor diagnoses and treats adults with any form of scleroderma, such as limited or diffuse systemic sclerosis and localized forms such as such as morphea, linear, and en coup de sabre. (Also see Difficult Diagnosis and Types of Scleroderma)
This doctor or scleroderma center is for adult scleroderma patients; they do not diagnose/treat juveniles (under age 18).
This medical center accepts Medicare.
This center is a member of the Scleroderma Clinical Trials Consortium (SCTC), which means that they participate in SCTC peer-reviewed international clinical trials for scleroderma.
06/21/2017: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator. Page information updated. Kirou Kyriakos, MD removed. JEF.
04/04/2016: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator, and updated by Jo Frowde, ISN Assistant Webmaster. Overview added.JEF
The Scleroderma and Vasculitis Center, Led by Dr. Robert Spiera at the Hospital for Special Surgery in New York City. This center treats adults with any type of scleroderma (either localized or systemic). ISN. Posted 01/20/12.
01/18/12: Page published.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: