|Types of Scleroderma Handled: All
Ages: Adults Only
Insurance: Probably takes most insurances
This center is led by Dr. Tracy M. Frech, who is devoted to scleroderma and they also have a team of scleroderma lung specialists. They treat adults with any type of scleroderma, including localized (morphea, linear, en coup) and (limited or diffuse) systemic sclerosis.
Scleroderma often takes many years to diagnose because of insidious onset, vague initial symptoms, and low physician and public awareness. It is typically diagnosed and treated by rheumatologists, but because it is a rare and very complex disease, there are only a few dozen scleroderma specialists in the United States. Expert care can be crucial for proper screening, diagnosis, patient education, clinical trials, and treatment. (Also see: What is Scleroderma?, Diagnosis of Scleroderma and Scleroderma Expert Directory)
Division of Rheumatology
University of Utah
50 N Medical Drive
Salt Lake City, UT 84132
Although there may be other doctors in this clinic or division, these are the only ones listed specifically as scleroderma experts by the center as of our last update.
Tracy M. Frech, MD, MS
This center treats adults with any type of scleroderma, including localized (morphea, linear, en coup) and (limited or diffuse) systemic sclerosis. (Also see Difficult Diagnosis and Types of Scleroderma)
This center/doctor reports that they are only able to treat adult scleroderma patients (age 18 or over).
The University of Utah Healthcare probably takes most insurances, but may not take Aetna or United Health Care. Call for more information. Please verify insurance coverage.
Dr. Frech is devoted to scleroderma and they also have a team of scleroderma lung specialists.
This center is a member of the Scleroderma Clinical Trials Consortium (SCTC), which means that they participate in SCTC peer-reviewed international clinical trials for scleroderma.
04/01/2016: Page information verified by Vanessa Hamann, ISN Scleroderma Expert List Coordinator, and updated by Jo Frowde, ISN Assistant Webmaster. Overview added. Updated insurance details added. JEF
University of Utah Systemic Sclerosis Program. This is a regional center of excellence, particularly for adults with systemic scleroderma lung involvement. ISN. Posted 11/14/2011.
11/14/11: Page published.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
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