| History of Scleroderma |
Paul Klee and Scleroderma
|School Report Resources|
The first clear description of it was made by Dr. Carlo Curzio in the mid-1700's.
Scleroderma: Background. Scleroderma is derived from the Greek words skleros (hard or indurated) and derma (skin). Hippocrates first described this condition as thickened skin. Dr. Carlo Curzio (1752) offered the first detailed description of this condition when a patient presented with hard skin, which he described as woodlike or containing a dry hide. The term scleroderma actually was applied to a patient's condition in 1836 by Giovambattista Fantonetti. He applied the term to a patient with dark, leatherlike skin who exhibited a loss of range of joint motion resulting from the skin tightening. Medscape.
Braden Pleas presented a 7th grade Culture Fair project on scleroderma yesterday at Chimacum Middle School in Chimacum, Washington. His board was then chosen to be one of ten to be displayed at the Jefferson County Library for two weeks! The left side of the board is titled, "What is Scleroderma?" with photos from ISN of Raynaud's and joint contractures. Then, "Five New Things I Learned." The middle is "Celebrities Working for a Cure" and the lower left section is on ISN and his interview with ISN Founder and President, Shelley Ensz, along with a pocket of ISN brochures. The center section is, "A Day in the Life of My Mom", where he graphed his mother's pain scale throughout a full day. The right side of the board is titled "Components of Culture". The ISN thanks Braden for educating the public and raising awareness of scleroderma! Posted 1-25-11.
A Painter's Disease. After his death in 1941, Paul Klee was diagnosed with scleroderma. He once wrote, "Everything vanishes around me, and works are born as if out of the void. Ripe, graphic fruits fall off. My hand has become the obedient instrument of a remote will." Medpage Today.
Paul Klee and His Modern Art Paintings. Klee and his wife Lily emigrated to Switzerland in 1933. In 1936 he was diagnosed with progressive scleroderma and his artistic output was severely reduced by the severe illness for about 18 months. Masterpiece Paintings Gallery.
Paul Klee. See Wikipedia halfway down the page. Answers.com.
Paul Klee. Metropolitan Museum of Art.
(Deutsche/German) Scleroderma and Paul Klee: Metamorphosis of life and art? Article in German. PubMed.
If you are a student, we hope you help raise awareness of scleroderma by doing a report on scleroderma! Here are some resources to speed you on your way to helping raise awareness of scleroderma.
What is Scleroderma? This is the best place to start! ISN.
What is Scleroderma, by Amy, Daughter of a Systemic Sclerosis Patient. Amy gave a school report and then submitted it to be included on our site. Don't copy it, of course, just use it as inspiration, or perhaps even do an attributed quote from hers! ISN.
Books on Scleroderma. Some of them might be available at your local library. If you plan ahead, you could ask the library to order them for you or transfer them from another library system. ISN.
Brochures on Scleroderma. They are in PDF format, in simple black and white, so you can print them for a hand-out along with a speech or report.
Causes of Scleroderma. The cause of scleroderma is generally unknown, however areas being investigated include autoimmunity, environmental exposures, genetics, and infections. Many researchers feel that several factors work together to induce scleroderma, such as a genetic inclination along with exposure to a toxin or infection which triggers the illness. ISN.
Copyright Policies. Students have some special copyright privileges, however it is important to always attribute sources. ISN.
Scleroderma Experts. Many scleroderma patients benefit from occasional consultation with a scleroderma expert. There are only a few centers in the world that specialize in scleroderma. ISN.
Symptoms of Scleroderma. A quick way to navigate through all our symptoms pages, with main menus for all major symptom categories. ISN.
Scleroderma Sites to Surf! There are dozens of fabulous scleroderma web sites all around the world, where you can garner a lot of super information, with listings available through the Scleroderma Webmaster's Association. SWA.
Stories from Patients and Caregivers. Many people find comfort or inspiration from reading about how other patients and caregivers have dealt with scleroderma. Our collection has over 500 stories in English, and also hundreds in other languages. ISN.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Michele Maxson, John Moffett, Joan-Marie Permison, John Roberts, Margaret Roof, and Maryellen Ryan.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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