Remembrance Resources

Author: Shelley Ensz. Scleroderma is highly variable. See Types of Scleroderma. Read Disclaimer
Our Condolences
Financial Donations and Bequests
Donating in Memory
ISN Scleroderma Research Fund
Morticians, Funeral Arrangements
Written Legacies
Stories In Loving Memory

Our Condolences

Our Heart Goes Out to You!

Donate in MemoryIf you, or someone you care for, has lost a friend, relative or co-worker to scleroderma or related illnesses, such as pulmonary hypertension, our heart goes out to you!

Unfortunately, systemic scleroderma is all too often disfiguring, disabling, and deadly. It leaves in its wake devastated loved ones. We may feel relieved that they are no longer suffering but, of course, we are bereft that they are gone.

Sometimes the illness moves so quickly or silently, or the diagnosis is so delayed, that we feel deprived of a chance for closure.

Ways in which we have dealt with our grief include donating in memory of our loved one ; supporting medical research ; writing a story in remembrance of them for posting on our website; and volunteering for scleroderma organizations.

In fact, many of us became involved in the cause of scleroderma only after our loved one had passed away. Usually we were too occupied trying to keep pace with their illness, or in denial that anything was seriously wrong with them, or simply unaware of how devastating scleroderma could be.

Please remember that we are always here for you. We are truly sorry for your loss, and we welcome your participation in the cause of scleroderma, in whatever manner and at whatever time that suits you best.

Financial Donations and Bequests

Donating in Memory

Donating In Memory. Remember your loved one by making a difference throughout the world by donating in their memory to the nonprofit International Scleroderma Network. We acknowledge each donation on this website, by mail, and in our newsletters. ISN.

ISN Scleroderma Research Fund

ISN Scleroderma Research Fund. Donating to the ISN Scleroderma Research Fund is a wonderful way to make a longlasting difference for scleroderma! The fund supports international peer-review research by the world's top experts in scleroderma. ISN.

Mortuaries, Morticians, Funeral Arrangements

Mortuaries, Morticians, Funeral Arrangements: If the family requests donations for scleroderma, you may collect the donations and forward them to the nonprofit International Scleroderma Network (in U.S. funds, please) with our simple ISN Print and Mail Form.

Donate in Memory. We promptly send lovely acknowledgement cards for every donation, and honor the memory of the deceased on our website and in our newsletters, too. We will also link to their obituary notice if donations are requested to the "International Scleroderma Network".

We encourage you to call our hotline (US toll free 1-800-564-7099 or direct dial 1-952-831-3091 (U.S.) or email us at [email protected], so that notices can be placed on our website promptly. Donate in Memory.

Written Legacies

Stories In Loving Memory

Scleroderma Survivors: In Memory Of. Our collection of stories of love and remembrance, by those who have lost a loved one to scleroderma or related illnesses. ISN.

Books of Comfort for the Bereaved

Each volume in the Voices of Scleroderma book series features stories in memory of those who have died from scleroderma and related illnesses. The series is produced by the nonprofit International Scleroderma Network and is a top notch resource for medical information and support. ISN.

Go to Conditions Associated with Scleroderma
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

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