Scleroderma Research

Author: Shelley Ensz. Scleroderma is highly variable. See Types of Scleroderma. Read Disclaimer
Causes of Scleroderma
History of Scleroderma
Postmortem Resources
Scleroderma Research Registries
Treatments and Clinical Trials


Scleroderma research covers potential causes of scleroderma, the history of scleroderma, postmortem resources for such issues as autopsies and cadavers, research registries for patients and family members, plus scleroderma treatments and clinical trials.

One decade distinct features, morbidity and mortality of scleroderma: a cross-sectional study. This study is the first epidemiologic survey on Iranian scleroderma patients with significantly large sample size compared to previous studies worldwide. PubMed, Clin Exp Rheumatol, 06/15/2016.

Integrin-modulating therapy prevents fibrosis and autoimmunity in mouse models of scleroderma (SSc). Researchers have developed a mouse model of Scleroderma and their studies are pointing the way to potential new drug therapies for the disease. Nature. 10/09/2013.

Causes of Scleroderma

Causes of Scleroderma. The cause of scleroderma is generally unknown, however areas being investigated include autoimmunity, environmental exposures, genetics, and infections. ISN.

Advanced Glycation
B and T Cells
Cluster South Boston
Dendritic Cells
Artificial Joints/Implants
Mercury (Amalgam)
Vinyl Chloride
Fetal Cells
Molecular Defect
Mucosal Immune System
Natural Killer Cells
Oxidative Stress, Lipids
Platelet Aggregation
Vitamin D Deficiency

History of Scleroderma

History of Scleroderma. When was scleroderma first diagnosed? Are there any famous people with scleroderma? Plus some school report ideas and examples. ISN.

History of Scleroderma
Paul Klee and Scleroderma
School Report Resources

Postmortem Resources

Postmortem Resources. Comprehensive information about after-death issues related to scleroderma, such as autopsy, use of cadavers for research, organ and tissue donation, and ways to honor the memory of your loved one. ISN.

Cadaver Research
Organ Donation
Tissue Donation
Remembrance Resources

Scleroderma Research Registries

Scleroderma Research Registries. You may join all of the research registries and quality of life studies that you are eligible for. It's not like clinical trials, where you are limited to just one. ISN.

Rheumatic Registries
Scleroderma Experts
Pulmonary Hypertension Registry
Twins/Close Siblings Autoimmune
U.K. Scleroderma Registries
U.S./Canada Scleroderma Registries

Scleroderma Clinical Trials

Scleroderma Treatments and Clinical Trials. Participating in clinical trials for scleroderma and related symptoms is a way to advance scientific understanding of the disease and its potential treatments. ISN.

Symptoms and Treatments
Scleroderma Experts
Scleroderma Research
Open Enrollments
Completed: Positive
Completed: Awaiting
Completed: Inconclusive
Completed: Negative
Go to Research Registries
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


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