Coping with scleroderma and any chronic illness can be a challenge. There are many things you can do to make you feel better mentally and physically. One of the worse things you can do is to isolate yourself from the people and things that you love. You should always try to stay active, happy and positive. This page will help provide some ideas to help you cope with scleroderma. ISN
But You Don't Look Sick: The Spoon Theory. I asked her to count her spoons. She asked why, and I explained that when you are healthy you expect to have a never-ending supply of "spoons". But when you have to now plan your day, you need to know exactly how many "spoons" you are starting with. Butyoudontlooksick.com.
Doctor/Patient Communication Tips. Quackwatch
Study: When those with a chronic illness exercise more, they worry less. Compared with similar individuals who did not exercise, the people who exercised had a 20% reduction in anxiety symptoms. Exercise helped people no matter what kind of health problem they had: cancer, depression, heart disease, fibromyalgia. Shari Roan. Los Angeles Times. 02/22/10.
Food and Drink
Pet Therapy: Huggable Healthcare Workers. The dog can be a distraction to the pain that a patient feels, and also to the rigor or the monotony of the therapy. It provides comfort for those who respond to animals. It also is a method to improve movement, to improve speech, and cognitive functioning. Discovery Health. (Also see Pain Management)
Pet Therapy. Studies have shown that physical contact with a pet can lower high blood pressure, and improve survival rates for heart attack victims. There is also evidence that petting an animal can cause endorphins to be released. Endorphins are chemicals in the body that suppress the pain response. HealthLine. (Also see Pain Management)
14 diseases you can get from your pets. Although the numerous health benefits of pets far outweigh the risks, it canít hurt to know what diseases to watch out for. Mother Nature Network, 10/01/2015. (Also see Pain Management)
What infections can animals pass to people? Animals can pass many infections to people, although this route of infection is rare. The medical name for these infections is zoonoses. NHS Choices, 04/20/2015. (Also see Pain Management)
Social and Personal Relationships
Social support: Tap this tool to reduce stress. Having close friends and family on whom you can count has far-reaching benefits for your health. Here's how to build and maintain these essential relationships. Mayo Clinic. (Also see Causes of Scleroderma: Stress)
Staying Happy and Positive
How Happiness Affects Your Health. Data show that positive mood, optimism and humor are linked to better health and well-being. ABC News, Medical Unit. 05/27/2013.
Fibromyalgia: Ten Strategies for Maintaining a Positive Attitude Deborah A. Barrett, Ph.D.
Support for Scleroderma
Working with Scleroderma
Disability Resources. Some people with systemic scleroderma have mild enough symptoms that they are able to continue working for years, or even decades. However, others may find that they are unable to continue working full time. ISN.
Free/Low Cost Meds
Medic Alert Programs
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, Volunteer, or Donate.
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report or update any page content or links.
Toll Free US/Canada Scleroderma Hotline: 800-564-7099