Living with a Chronic Illness

Author: Janey Willis. Scleroderma is highly variable. See Types of Scleroderma. Read Disclaimer.

Living with a chronic illness usually requires several lifestyle changes that reduce stress, limit exposure to unhealthy situations, help you get some type of exercise, encourage eating healthy, and promote lots of laughter. We hope that this section helps you discover ways to living with your illness and maintain a high quality of life. ISN.

Factors influencing the occupational trajectory of patients with systemic sclerosis (SSc): a qualitative study. The decisions patients with SSc take concerning work depend on an interplay between many factors and, especially, on the patients' personal interpretation of these factors. PubMed, Clin Exp Rheumatol, 03/20/2015.

The Biology of Kindness: How It Makes Us Happier and Healthier. There's a reason why being kind to others is good for you and it can now be traced to a specific nerve. Times Healthline, 05/09/2013.

Your Brain on Laughter. Are they laughing at you or laughing with you? Your brain can tell the difference. Times Healthline, 05/09/2013.

Living with ALS, Part III: Bruce Kramer describes 'The Tell'. What I came to realize very quickly, by the second day after my diagnosis, was that even though I knew it was true, others had to deny it. MPR News. 03/07/12.

Shifting priorities in multimorbidity: a longitudinal qualitative study of patient's prioritization of multiple conditions. The study demonstrates the impact of multiple conditions on many aspects of people's illness management. Narratives illuminated how individual's condition priorities changed at pivotal points and altered their engagement with self-management practices. This is influenced by contact with health professionals and how people framed illness and lifestyle changes. Rebecca L. Morris, Chronic Illness, February 22, 2011.

Those with chronic illness need to make financial plans early, advocate says. Simply having a will or even a list of end-of-life concerns isn't enough. People who are chronically ill need to maintain as much control over their affairs as they can and to trust that everything will go as planned during times when their condition temporarily makes them too sick to care for themselves., 04/02/2011.

Lifetime Risk and Duration of Chronic Disease and Disability. For women, Blacks, and non-Blacks, arthritis is most common and has the longest average duration, followed by diabetes and COPD. Among men, diabetes duration is longest, followed by COPD. Those very overweight most of life and persons with dementia have the greatest disability risk and relatively long disability durations. Brenda C. Spillman, Journal of Aging and Health, December 2010.

Chronic disease requires action plan. Research found that people who learned how to solve problems, communicate with doctors, relax, eat well and manage their emotions improved their health and spent less time in the hospital than those who didn't. Barbara Quinn. NewsOK. 11/02/10.

Staying Festively Flu-Free, Ryerson Holiday Tips. Timely tips for staying cold and flu free while still enjoying holiday parties from Ryerson University. Medical News Today. 11/30/10.

Stress TestStress Test: Find your stress level by checking the events you have experienced in your life in the last year. Even vacations and holidays can add to our stress level. If your score totals 150 or more: You have a 50-50 chance of developing an illness. If your score totals 300 or more: You have a 90 percent chance of developing an illness. HealthCentral.

Relationships Improve Your Odds of Survival by 50 Percent, Research Finds. The study shows how low social interaction compares to more well-known risk factors: Equivalent to smoking 15 cigarettes a day, to being an alcoholic, more harmful than not exercising and twice as harmful as obesity. ScienceDaily July 27, 2010 (Also see Marriage, Family and Health)

5 Mind-Blowing Benefits of Exercise. Think exercise is all about toned abs and weight loss? It also makes you happier and smarter. Deborah Kotz. U.S. News & World Report. 06/30/10.

Chronic Disease Expert: U.S. Health Care System Needs To Treat 'Whole Person'. The way a person can take control or manage a chronic illness is to first understand that most people live 99.9 percent of their lives outside of the health care system. So, they are responsible for managing the disease during that time, for making decisions [about exercise, eating, and activity]. Jessica Marcy. Kaiser Health News. 06/25/10. (Also see Living with Chronic Illness)

3 Things You Can Do to Simplify Life with Chronic Illness. Declutter your home. Create a Sanctuary. Streamline your chores and errands – Ask for help/delegate. Ann Pietrangelo, Care2. 05/17/10.

Go to Marriage, Family and Health

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Copyright 1998-2015, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.