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Andy Markman: Systemic Sclerosis (Scleroderma)

That which does not kill us makes us stronger.

Yellow Hibiscus for Andy by Ione Bridgman, ISN Artist Well, where do I start? I am a forty-two-year-old male. I have had scleroderma for two and a half years. It was first diagnosed as an "atypical phenomena", but in reality turned out to be Systemic Sclerosis.

Luckily for me I lived in New York City, and I was put in touch with Dr. Harry Spiera, a rheumatologist who runs the scleroderma clinic at Mt. Sinai Hospital in New York City. He knew exactly what was happening and how to treat me. This man truly is an angel.

I had a bad time of it for the first one and a half years with esophageal involvement, myositis, shingles, osteoporosis, interstitial lung disease, Raynaud's, etc., and I have been on more medication than I care to think about. I am in pain most of the time.

But what I have learned is that I can compensate and live with anything. A German philosopher once wrote, "That which does not kill us makes us stronger." How true that is.

For all of you who have recently contracted this illness, my heart and prayers go out to you. But remember late at night when we feel sorry for ourselves and that little voice in our head says, "Why me?", the answer that comes to me is "Why not me." I do not like it, but I deal with it and I spare my family and friends the "woe is me" stories.

The only bit of advice I can give is stay mentally tough, see your doctor regularly, and live your life the best way you can. God Bless.

To Contact the Author

Andy Markman
Email: [email protected]
Story posted 8-9-02

Story Artist: Ione Bridgeman
Story Editor: Judith Devlin
LINKS
Scleroderma
Esophageal Involvement
Interstitial Lung Disease
Myositis
Mt. Sinai Hospital
Raynaud's
Scleroderma

ISN Artist: Ione Bridgman

Ione BridgmanISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series .

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Ang: Morphea and Fibromyalgia
 
 

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Copyright 1998-2015, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.