Some time ago my dad was diagnosed with fibrosing alveolitis (which is also known as pulmonary fibrosis). At age seventy-five, it did not seem to bother him much. He could feel his lungs were a bit stiff but he could still swim thirty to forty-five meters UNDERWATER twice a week.
Eight weeks ago he had a heart attack, but after a few days in Coronary Care he was almost ready to come home. Unfortunately he then caught the first of several chest infections, which ended with his horrible death from respiratory failure two days ago.
I'm grieving badly, but what confuses me is that the hospital is blaming the fibrosing alveolitis, which they say entered an aggressive phase two days before his death. I thought that it was a slow, progressive disease. Am I wrong?
(Email address withheld)
Story posted 4-11-01
Story Artist: Shelley Ensz
Scleroderma Survivor Stories
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: