SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Angela M: Diffuse Scleroderma

Italian

Cream Jonquil by Sherrill Knaggs, ISN Artist I am fifty-eight years old, and I was diagnosed with this illness about six years ago, but probably had it before.

Up until now I have had polymyositis that got better with a bit of cortisone, esophagitis kept at bay with medicine and some heart problems. A while ago my hands started to swell, and my middle finger is a bit bent. The rheumatologist that treats me says it is due to the illness, but my orthopedist says it is a problem that should be operated. Whom should I believe?

I have been through surgery on one finger where I had endrocoma, amartoma in a lung, angioplastia, carpal tunnel. These days I take Ticlopidina 250mg twice daily, Azatioprina 50mg daily, Sotalolo 40mg three everyday, omeprazen 20mg in the morning, folina 5mg, Inegy 10/20mg in the evening.

But what hurts me the most is that my children believe this is an imaginary illness. Perhaps they don't want to realize the truth?

To Contact the Author

Angela
Email: Withheld by Request
Story edited 09-21-06 JTD
Story posted 10-27-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Devlin
LINKS
(Italiano) Angela M: Sclerodermia Diffusa

English:
Diffuse Scleroderma
Esophagitis
Polymyositis
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Angela O: CREST
 
Recent Donors
See ISN News for recent donors, including memorials for
Christine Kane, Lilian and Lee Stiles, Charles Kendrick Watts and Marta Marx.
 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.