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Anita A: Sister of Systemic Scleroderma Patient

She is an amazing person with a wonderful attitude.

Let's Go Dancing, a shoe collection, by Shelley EnszMy sister, Vicki, has systemic scleroderma. She has had a heart transplant and a kidney transplant. It has been amazing to our family the courage and stamina that she has through all that she has endured.

She was diagnosed sixteen years ago. She received her new heart ten years ago and is now beginning to have some heart problems with possible rejection. She has had one heart attack and is in congestive heart failure as we speak. My sister is in the hospital this evening.

I was looking for more information when I came across this site.

She has had a toe amputated and a finger amputated. She has also had bypass surgery on her foot to help with the blood flow. This is a horrible disease.

She suffers with Raynaud's disease and has esophagus problems along with dental problems too. She has to have a shot every day (blood thinner) for the rest of her life.

She is an amazing person with a wonderful attitude.

I wish each of you the very best.

To Contact the Author

Anita A.
Email: [email protected]
Story edited 07-24-2010 JTD
Story posted 09-23-2010 SLE

Story Artist: Shelley Ensz
Story Editor: Judith Thompson Devlin
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ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Anita G: Localized Scleroderma
 
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In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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