Almost two years ago I was diagnosed with this illness, and they still haven't given me a specific diagnosis, which makes things very difficult since I ask for help and nobody is willing to help me. This all started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms.
At times I feel like my life is meaningless, I am overwhelmed with sadness, fear and solitude, even though I know I am not alone, my family and friends are with me.
I want to tell you that you are not alone, I understand what you are going through, and if you ever want to talk to somebody and share your experiences, you can count on me.
I wish you all that you keep on fighting, and that you keep the faith that together we'll find a solution. Hugs, and good luck in this struggle.
New email address needed 08-06-09 SLE
Old Email Prefix:aniguz_83
Story edited 11-23-07 JTD
Story posted 01-21-08 SLE
ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Acerca de la Esclerodermia
Anita G: Esclerodermia Localizada
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.