I was diagnosed with Lichen Sclerosus et Atrophicus. I was treated with ultra potent steroid cream (Temovate) and an autoimmune suppressant ointment. Neither has made any difference with stopping the spread.
My concern is that it is spreading all over my body: both legs, my back, my neck and moving toward my face. It is in my underarms, my navel, my lower extremities. It is moving toward my hands, with some spots on one hand.
My doctor has no idea what to do, and feels that my case is very unusual as she had never heard of it spreading so much. The genital area is in remission, but it continues to spread on my skin. She says it is stress aggravated, but I do not know how to change my life and manage my stress. Help! I am going to try the Mayo Clinic.
Email: Withheld by request
Story edited 03-01-05
Story posted 03-11-05 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Lichen Sclerosus et Atrophicus
Skin Diseases Similar to Scleroderma
Lichen sclerosus is also known as lichen sclerosis or lichen sclerosus et atrophicus.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: