I was diagnosed with Lichen Sclerosus et Atrophicus. I was treated with ultra potent steroid cream (Temovate) and an autoimmune suppressant ointment. Neither has made any difference with stopping the spread.
My concern is that it is spreading all over my body: both legs, my back, my neck and moving toward my face. It is in my underarms, my navel, my lower extremities. It is moving toward my hands, with some spots on one hand.
My doctor has no idea what to do, and feels that my case is very unusual as she had never heard of it spreading so much. The genital area is in remission, but it continues to spread on my skin. She says it is stress aggravated, but I do not know how to change my life and manage my stress. Help! I am going to try the Mayo Clinic.
Email: Withheld by request
Story edited 03-01-05
Story posted 03-11-05 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Lichen Sclerosus et Atrophicus
Skin Diseases Similar to Scleroderma
Lichen sclerosus is also known as lichen sclerosis or lichen sclerosus et atrophicus.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Michele Maxson, John Moffett, Joan-Marie Permison, John Roberts, Margaret Roof, and Maryellen Ryan.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.