Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Ariel: Linear Morphea

Luckily, it only affects my skin, so I can still dance and play the piano.

A Star is Born, for Ariel by Shelley Ensz I am fourteen years old and was diagnosed with linear morphea on my right arm about two years ago. Luckily, it only affects my skin so I can continue with my hobbies of dancing and playing the piano.

I started using Dovonex about six months after the disease was diagnosed, but unfortunately, there weren't any noticeable improvements. My doctor then suggested PUVA light therapy. However, in the area in which I was living at the time, there was no UVA-1 light, so the doctors created a protocol for just regular UVA light. Through a mistake in carrying out the treatment, the light caused second degree burns on my arm.

Now, six months later, I have tried to use Dovonex again, but the skin still can't tolerate it. Because of that, we are thinking about starting PUVA light therapy again and would like to know if anyone has tried this and has experienced any improvements. Thank you!

To Contact the Author

Email: [email protected]
Story posted 8-22-02

ISN Artist: Shelley Ensz
Story Editor: Judith Devlin
Juvenile Scleroderma
Linear Scleroderma
Morphea Scleroderma

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Ariel D: Pansclerotic Morphea
Recent Donors
See ISN News for recent donors, including memorials for
Christine Kane, Joleen M. Cascaden.

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.