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Ashlin: Localized Scleroderma

It took me five months to realize that I needed to go to the doctor, and now I feel that I should not have waited so long.

My name is Ashlin and I was diagnosed with localized morphea linear scleroderma on March 11, 2004. I am eighteen years old.

I started detecting small bruises on my left leg in August. I did not think anything of them until it had spread all over my leg. It took me five months to realize that I needed to go to the doctor, and now I feel that I should not have waited so long.

Then I went to the doctor and they diagnosed me. The doctor told me that this is a very rare disease and that to get it at eighteen years of age is even more rare. I am really scared as to what is going to happen to me. I was involved in almost every sport you can think of and now I cannot participate in any of them due to soreness and pain in my left leg.

I really have not found out too much yet, except for the fact that I have this disease. The doctor told me that there is no cure for this disease and that the best cure is prayer. It is amazing how you think nothing bad can ever happen to you until it really does.

Now God and prayer really come into play. I have always believed in God, but now I need to believe how strong the power of prayer can be.

Webmaster's Note: Localized Scleroderma (Morphea/Linear) typically begins during childhood. Some treatments are available and they are most effective when started early. See a Juvenile Scleroderma expert for the best treatment advice. Any form of scleroderma that begins during childhood is also referred to as Juvenile Scleroderma.

To Contact the Author

Ashlin
New email address needed 09-14-06 SLE
Old Email Prefix: ashlinalbrecht04
Story posted 3-24-04 SLE

Story Artist: Judy Tarro
Story Editor: Judith Devlin

LINKS
Juvenile Scleroderma
Linear Scleroderma
Localized: Morphea
What is Scleroderma?
Types of Scleroderma

ISN Artist: Judy Tarro

Judy TarroJudy Tarro, ISN Artist, created the digital photo to illustrate the story on this page.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Audley: Mother of Linear Morphea (en coup de sabre) Patient
 
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