Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Audley: Mother of Linear Morphea (en coup de sabre) Patient

My motherly intuition told me that the diagnosis was not correct.

Flowers for Audley by Shelley Ensz Our twenty-one-year-old daughter, Diana, was diagnosed in August of 1999 with Morphea Scleroderma. Since it is on her face and head, she is considered to have the en coup de sabre type of Morphea.

After one diagnosis of Vitiligo, my motherly intuition told me that the diagnosis was not correct so we made appointments with two more doctors who confirmed the Morphea diagnosis. (One did a biopsy.)

We found a doctor in Birmingham, Alabama, Dr. Craig Elmets, who specializes in Scleroderma, and he used a UVA 1 light on Diana's lesions for approximately six months. She has shown no signs of the disease progressing.

She is a very happy and beautiful girl and covers her scar with corrective camouflage makeup. Since the one scar on her forehead is en coup de sabre, it is indented so her skin is uneven there. She deals with it wonderfully. The area on her scalp is right at her "part-line" and because she has lost hair in that area, she parts her hair on the opposite side and it looks fine.

If you need information on the doctor who treated her, feel free to contact me via e-mail at [email protected]

God bless you all!

To Contact the Author

Email: [email protected]
Story posted 4-20-02
en coup de sabre
Juvenile Scleroderma

ISN's Voices of Scleroderma Volume 2

The story on this page is featured in our book, Voices of Scleroderma Volume 2! ISN.

Go to Aurora: Linear Scleroderma
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.