Our twenty-one-year-old daughter, Diana, was diagnosed in August of 1999 with Morphea Scleroderma. Since it is on her face and head, she is considered to have the en coup de sabre type of Morphea.
After one diagnosis of Vitiligo, my motherly intuition told me that the diagnosis was not correct so we made appointments with two more doctors who confirmed the Morphea diagnosis. (One did a biopsy.)
We found a doctor in Birmingham, Alabama, Dr. Craig Elmets, who specializes in Scleroderma, and he used a UVA 1 light on Diana's lesions for approximately six months. She has shown no signs of the disease progressing.
She is a very happy and beautiful girl and covers her scar with corrective camouflage makeup. Since the one scar on her forehead is en coup de sabre, it is indented so her skin is uneven there. She deals with it wonderfully. The area on her scalp is right at her "part-line" and because she has lost hair in that area, she parts her hair on the opposite side and it looks fine.
If you need information on the doctor who treated her, feel free to contact me via e-mail at firstname.lastname@example.org
God bless you all!
Story posted 4-20-02
en coup de sabre
The story on this page is featured in our book, Voices of Scleroderma Volume 2! ISN.
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