I have never met anyone with my complaint and as complaints go I realize I am lucky,
but I must admit I wish it was not me with the complaint.
I have been diagnosed with telangiectasia. When I was fifteen my local doctor told my parents it was because I sat too close to the heater and burnt my legs. It was only on the feet and backs of my ankle. Back in 1960 this sort of complaint was unheard of and everyone believed it, but I never remembered doing that.
A few years later when I was a member of the armed forces the specialists tried a number of treatments, packing my legs in CO2 slush and burning them. I stopped it as the treatment was worst than the complaint. It was unsightly mainly and getting into a bath was hopeless as the water needed to be so cool to put my feet in that the rest of my body was freezing. So I ignored the problem and wore long slacks and skirts.
When I turned forty it started on my hands and traveled up my arms. It is now on my breasts, stomach and back. Where I wear my watch it is not blemished.
About five years ago some specialists at St. Vincents Hospital had a symposium and I was one of the subjects but they did not have anything to assist me. Laser could help but was very expensive and I am a working single parent and could not afford the time off work or the expense. I was happy to offer my assistance and let them study me as I thought that if they could find an answer for young people not to have to live with the 'red rash' I was happy to oblige. I have never met anyone with my complaint and as complaints go I realize I am lucky but I must admit I wish it was not me with the complaint. No one really knows much about it.
I have now become anemic and the hematologist is looking into whether the telangiectasias could be causing this problem. I would love to hear from any other similar cases. I use makeup to cover the blemishes in summer but it does not always work too well.
Email: [email protected]
Story edited 08-04-07 JTD
Story posted 08-21-07 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.