Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Beth R: Eosinophilic Fasciitis

It wasn't until my skin became bumpy that my doctor finally realized what I had.

Cream Astromerias by Sherrill Knaggs, ISN Artist I was diagnosed with Eosinophilic Fasciitis almost a year ago. My symptoms came on very suddenly and started with my muscles being so sore it was hard to move. From there my skin got very hard and tight and eventually my upper arms looked like an orange peel.

It wasn't until my skin became bumpy that my doctor finally realized what I had. The diagnosis was made after a muscle biopsy was done.

My doctor started me on 60 mg. of prednisone and slowly tapered me down to where I am now, 3 mg. a day. I was due to come off the prednisone this week, but after my latest blood work, I was told my Eosinophilic were starting to increase again.

I have come a long way since last October, but I am still far from being normal. My arms and legs are still tight and I still cannot make a fist.

I would love to hear from anyone who has this unusual disease. In particular, I am wondering how people are doing now after previously having Eosinophilic Fasciitis.

To Contact the Author

Beth R.
Email: [email protected]
Story edited 10-20-06 JTD
Story posted 10-26-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Eosinophilic Fasciitis

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Betty Fults: CREST Scleroderma
Recent Donors
See ISN News for recent donors, including memorials for
Christine Kane, Joleen M. Cascaden.

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.