In May 2002, while in Seattle, I was lifting weights, laying on my back, and the weight bar hit my forehead. This did not cause any real pain or trauma at the time, but it did hit fairly hard. Within a few days I noticed a discolored area on the right side of my forehead starting at the hairline. Within two weeks the spot was fairly pronounced, about one inch wide and a couple inches long, culminating in a point on the lower end.
In July 2002, while in San Diego, I went to an ophthalmologist who came to no conclusions. He said he had not seen anything like this previously. He thought it was some sort of localized trauma that would return to normal after a few months. He said to call on him in a few months if it did not return to normal.
A year later in May 2003 and back in Seattle, the spot has not changed, but it is now white and very pronounced. It does have a few, small dark brown spots that cover about ten percent of the white spot. Also, the spot is about one and one half inches into the hairline and I have lost the hair in this area. I went to see another dermatologist who did a biopsy and diagnosed me with linear scleroderma. She invited me to a meeting of twenty or so dermatologists in Seattle. I went to the meeting, they all looked at me, and diagnosed me with the same. We began treatment using an antibiotic. I was supposed to used it for five months, based on some anecdotal evidence that this may help. I used it for two to three months with no change to the spot on my forehead and stopped treatment.
In August 2003, while in San Diego the spot has grown about twice as long, but about the same width. It is now getting near my eyebrow. I am a bit concerned it may begin to encroach on my eye and I am not sure what will happen. I went to see the original dermatologist whom I saw in May 2002. I shared with him the diagnosis from the Seattle doctor and he agreed. He placed me on a topical cream that is some sort of synthetic Vitamin D (I think).
Now it is October 2003, in San Diego and I have been using the topical for six weeks and nothing has changed yet. I am going to start researching a little bit more and see if I can steer the doctor toward a more effective treatment program.
| Bill B.
New email address needed 07-18-06 SLE
Story posted 10-13-03
Story Artist: Judy Tarro
Story Editor: Judith Devlin
En Coup de Sabre
Judy Tarro, ISN Artist, created the digital photo to illustrate the story on this page.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.