In 1975, when I was five years old, they said I was the fourth known case of localized scleroderma in a male in the United States.
I have a deformed left foot and right hand. I have scleroderma plaques covering my left leg, stomach, chin, forehead, and lower back. I have had so many different tests done and doctors from all over the world look at me and take pictures of me, I could write a book!
There have been good times and bad times. I am thirty-two years old now, and I have a beautiful wife and four beautiful children.
All I want to say is that life will go on. I think we should do what makes us happy: pray, fish, ride motorcycles, whatever — and remember there is always someone out there who is worse off than we are.
I believe in using the power of the mind to help make dreams come true.
Email: [email protected]
Story posted 12-1-01
Story edited VH1: JTD9-5-03
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
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Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
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