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Bill M: Localized Scleroderma

In 1975, they said I was the fourth known case of localized scleroderma in a male in the United States.

Keys to Happiness for Bill M. by Shelley Ensz In 1975, when I was five years old, they said I was the fourth known case of localized scleroderma in a male in the United States.

I have a deformed left foot and right hand. I have scleroderma plaques covering my left leg, stomach, chin, forehead, and lower back. I have had so many different tests done and doctors from all over the world look at me and take pictures of me, I could write a book!

There have been good times and bad times. I am thirty-two years old now, and I have a beautiful wife and four beautiful children.

All I want to say is that life will go on. I think we should do what makes us happy: pray, fish, ride motorcycles, whatever — and remember there is always someone out there who is worse off than we are.

I believe in using the power of the mind to help make dreams come true.

To Contact the Author

Bill M.
Email: [email protected]
Story posted 12-1-01
Story edited VH1: JTD9-5-03

Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
Localized Scleroderma
Voices of Scleroderma Volume 1

This Story is Featured in Voices of Scleroderma Volume 1

Voices of Scleroderma Volume 1 The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Bill T: Diffuse Scleroderma
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In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


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