It all began in 1998, I was thirty-two years old. Two of my fingers turned white. At first I didn't think much of it, but when I saw the problem continued I talked to my doctor, she told me it could be Raynaud's Phenomenon. So I took some tests that confirmed the diagnosis.
But the problems were only begining and I didn't know! After that I got diagnosed with bilateral thoracic outlet syndrome, and because of this I had to have surgery four times in six months. Afterwards, in 2000, I began to have vasodilator therapy at the hospital (flebo with alprostar). At first these therapies were done for 28 days; after a while they were for one week a month throughout the year.
A year and a half ago I began to feel a lot of pain in my right hip. After several exams I was diagnosed with a form of arthritis that set me back yet again. It affected my back and shoulders, ankles, and fingers. I have decided to have surgery again (in January), to try and solve at least part of Raynaud's. I will have two different stellectomies, and I hope to God it all turns out well.
Email: Withheld by request
Story submitted 12-22-05
Story edited 01-29-06 AL
Story prepared 01-29-06 JTD
Story posted 01-29-06 SLE
Story Artist: Shelley Ensz
Story Editor: Judith Devlin
Story Translator: Alba León
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email firstname.lastname@example.org to request our Welcome email, or to report bad links or to update this page content.