Interstitial cystitis (IC) is an inflammation of the bladder which can occur by itself or in conjunction with other autoimmune diseases, such as fibromyalgia, scleroderma, lupus, or Sjögren's Syndrome. Symptoms include bladder spasms (which can be very painful), bladder frequency, bladder pain, low bladder capacity, and incontinence.
When I was sixteen I was diagnosed with Interstitial Cystitis. It has been the most painful thing in my life.
I have had a interstim put in (it is an implanted electrical device for the bladder) but it has not worked, it just gave me more pain. I wet the bed almost every night and I have developed a very depressing life.
I am now twenty years old and have been through everything. I am at the end of the road and cannot find a doctor who can help me. I want a bag or catheter.
I need help from anyone that knows anything. I never leave the house. I am just at the point where I only go back and forth to class.
Email: [email protected]
Story edited 12-01-06 JTD
Story posted 02-08-07 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: