I am a mother of six children. My fourth child, Bregan, who is seven years old, has just been diagnosed with morphea. This started three years ago with a patch on the left side of her abdomen, and it seems to be spreading around the left side to her back. She is still going for blood tests to make sure it is not affecting any other body organs.
This is all new to me, and I am finding it hard to understand. I have a lot of questions, but find it hard to get the answers. I suppose you could say I am hoping for good answers to say that this is just going to go away.
We live in New Zealand and have been told this is very rare. Bregan has seen several specialists, and they were a bit skeptical at first, but I think it is because they do not know enough about it. Could someone please tell me more about it and help me understand this disease a bit more?
Old Email Prefix: debs-john
Story posted 3-25-02
Story edited VH1: JTD 8-21-03
New email address needed 9-3-03 SLE
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: