I was twenty-nine years old when I started having pain in my fingers when I was cold. It went on for a few years like this
One morning I woke up for work and I had so much pain in my hand and fingers that I had to go to the hospital. The doctors had no clue what was going on with me. I also had a dark ring around my belly. I just didn't know what was going on.
After about a year of pain and barely getting out of bed, finally one of my doctors wanted to try something new. Botox injections in my hands. And it really works! I had three ulcers on my hands from Raynaud's and by the next day they were gone.
If you have any other information that you know works or just want to chat please email me.
Story edited 05-22-2010 JTD
Story posted 06-14-2010 SLE
Story Artist: Shelley Ensz
Story Editor: Judith Thompson Devlin
CREST Syndrome Stories
Digital Ulcer Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: