I am sixteen years old now and growing up with this disease has been a real struggle. Trying to hide it from my friends so I would not seem different has been hard. I try to live a normal life and keep active.
It is hard to explain to my friends why I am absent from school a lot. I usually give them reasons like I was not feeling good (usually I do not feel good) or that I woke up late, but really I miss school a lot because of my illness or because of my many appointments at Children's Hospital.
Lately I have been interested in researching it and found out I am not the only one. I wanted to tell my short summary life story for others to relate to and know that they are not alone.
Email: Withheld by request
Story posted 08-10-04 SLE
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